Gaucher Journey: Adrianna Baker
Adrianna had symptoms when she was young, and after her sister was diagnosed with Gaucher disease, she realized she had it, too.
State-of-the-Art Bone Imaging with Australia’s Dr. Roger Zebaze
Dr. Robin Ely of NGF recently traveled to Melbourne, Australia, where she visited Monash University and Dr. Roger Zebaze.
Gaucher Journey: Kammeron R.
Kammeron always thought she was a carrier for Gaucher disease – but realized she needed to be her own advocate to get an official diagnosis.
NGF Co-Founder Dr. Robin Ely Presents at WORLDSymposium Conference
Dr. Robin A. Ely, Clinical/Science Advisor, Director of the National... Read more
Gaucher Journey: Rivka Silver
Rivka Silver learned about Gaucher after her sister's prenatal genetic testing, and it hasn't stopped her from living a full, healthy life.
Gaucher Journey: Morán Family
Alex Morán shares the story of his son Gabriel, who presented symptoms and was diagnosed with Gaucher disease Type 1.
NGF Global Diagnostic and Treatment Initiative Heads to India
Dr. Robin A. Ely, Clinical/Science Advisor, Director of the National... Read more
Gaucher Journey: Shauna Mangum
Want to share your story? Contact us and we’ll be... Read more
National Gaucher Foundation Founder Robin Ely, MD to Speak in India
As part of organization’s Global Diagnostic and Treatment Initiative, Dr.... Read more
Gaucher Journey: Betsy Findley
Want to share your story? Contact us and we’ll be... Read more
