Category: Ambassador Spotlight

Ambassador Spotlight: Kelly Burns

What were the events leading up to your diagnosis? I had been getting lots of nose bleeds as well as experiencing a lot of bruising and extreme fatigue. I was a teenager. I chose to hold off on starting treatment since I was stubborn and didn’t want bi-weekly infusions to disrupt my schedule. What has… Read More »

Ambassador Spotlight: Michele Pryor

This month we are introducing you to NGF Ambassador, Michele Pryor. What were the events leading up to your diagnosis? As a young child, I had a distended abdomen, low blood counts, high bilirubin and bruised easily. For several years, I saw a variety of doctors and was misdiagnosed before being referred to a rare… Read More »

Ambassador Spotlight: Carrie Choate

Last year, we introduced you to our first group of elite NGF Ambassadors. This year, we will be sharing a closer look at each of our ambassadors and their journey with Gaucher disease. First up: Carrie Choate. What were the events leading up to your diagnosis? The events leading up to my diagnosis were a… Read More »

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