NGF Community Blog

Research May Help Predict Gaucher Symptoms, Improving Treatments

The way Gaucher disease affects different individuals can seem like a mystery. Even in the same family, some people have only mild signs and symptoms, while others face devastating outcomes. Now, researchers are unraveling the genetic changes that cause Gaucher disease. Their work tells patients and families more about how genes influence Gaucher disease—and how… Read More »

Topics: About Gaucher Disease, Gaucher Disease Research, Living With Gaucher Disease

Sleep & the Immune System: Why Sleep is Important For Your Health

Restful sleep—the period each day when our bodies recharge and repair—is a challenge in modern life. As the pandemic has changed our routines and increased people’s stress, sleep is even more elusive. We spoke with Andrew Westwood, MD, about why sleep is important and how to sleep better. Dr. Westwood is a sleep neurologist and… Read More »

Topics: Living With Gaucher Disease

NGF 2020 Impact Report

Unquestionably, 2020 was a year like no other.  Everyone has had to pivot enormously. The National Gaucher Foundation has continued to focus on how to best provide information and support to our community during these extraordinary times. We are proud that the NGF has continued to fulfill our mission to provide financial support and services… Read More »

Topics: About the National Gaucher Foundation

7 Financial Tips for People With a Chronic Disease

Financial literacy is a key component of self-sufficiency. For people living with Gaucher disease, as for anyone with a rare disease, significant health-related concerns come with the diagnosis. Those health concerns can impact your finances—and highlight the importance of being financially literate. To learn more about financial literacy for people with a chronic condition, we… Read More »

Topics: About Gaucher Disease, Living With Gaucher Disease

What People With Gaucher Disease Should Know About COVID-19 Vaccines

As of early October 2020, the world has been grappling with the novel coronavirus disease 2019 (COVID-19) pandemic for about eight months. Globally, more than 35 million cases of the coronavirus have resulted in more than 1 million deaths. In the current wave, 99% of cases are mild, while 1% of people with COVID-19 are… Read More »

Topics: About Gaucher Disease, Living With Gaucher Disease

4 Ways to Improve Gut Health & Reduce Inflammation

In your small and large intestines—the human gut—you host trillions of microbial cells. These microorganisms make up the microbiome, the bacterial community that affects how you digest food, process nutrients, and interact with every aspect of the physical world. For everyone, but especially people living with chronic metabolic conditions like Gaucher disease, the gut microbiome… Read More »

Topics: About Gaucher Disease, Living With Gaucher Disease

The Importance of the Affordable Care Act Amid COVID-19

The Patient Protection and Affordable Care Act (ACA), signed into law in 2010, significantly expanded access to health insurance in the U.S. Also known as “Obamacare” or PPACA, the ACA created health insurance exchanges where people can enroll in insurance coverage that isn’t tied to employment. The federal government operates HealthCare.gov, an exchange that currently… Read More »

Topics: About Gaucher Disease, Living With Gaucher Disease

5 Exercises for Building Emotional Resilience for You and Your Child

In today’s overwhelming environment, it’s more important than ever to develop emotional resilience—the ability to recover from stress and anxiety. With constant device usage, adults, teens, and kids face a never-ending news cycle and pressures from social media. Add the challenges of living with a chronic condition like Gaucher disease, and developing life skills that… Read More »

Topics: About Gaucher Disease, Living With Gaucher Disease

How to Build Bone Density: 5 Bone-Strengthening Exercises

Exercise is great for just about everyone. Your heart, muscles, joints, and lungs are meant to work, whether you run ultramarathons or have a seated stretching routine. For people living with Gaucher disease, exercise is particularly vital and can help build bone density. Weight-bearing, flexibility, and bone-strengthening exercises keep your bones, muscles, and joints strong…. Read More »

Topics: About Gaucher Disease

4 Natural Ways to Boost Your Immune System: Managing Inflammation and Gaucher Symptoms

Everyone experiences inflammation, the body’s response to stress, illness, and other external inputs. People living with Gaucher disease may have a higher level of inflammatory response because their bodies are constantly working to manage the disease. The good news: You can help your body become more resilient. Dr. Robin Ely explains the role inflammation plays… Read More »

Topics: About Gaucher Disease

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