NGF Community Blog

4 Ways to Improve Gut Health & Reduce Inflammation

In your small and large intestines—the human gut—you host trillions of microbial cells. These microorganisms make up the microbiome, the bacterial community that affects how you digest food, process nutrients, and interact with every aspect of the physical world. For everyone, but especially people living with chronic metabolic conditions like Gaucher disease, the gut microbiome… Read More »

Topics: About Gaucher Disease, Living With Gaucher Disease

The Importance of the Affordable Care Act Amid COVID-19

The Patient Protection and Affordable Care Act (ACA), signed into law in 2010, significantly expanded access to health insurance in the U.S. Also known as “Obamacare” or PPACA, the ACA created health insurance exchanges where people can enroll in insurance coverage that isn’t tied to employment. The federal government operates HealthCare.gov, an exchange that currently… Read More »

Topics: About Gaucher Disease, Living With Gaucher Disease

5 Exercises for Building Emotional Resilience for You and Your Child

In today’s overwhelming environment, it’s more important than ever to develop emotional resilience—the ability to recover from stress and anxiety. With constant device usage, adults, teens, and kids face a never-ending news cycle and pressures from social media. Add the challenges of living with a chronic condition like Gaucher disease, and developing life skills that… Read More »

Topics: About Gaucher Disease, Living With Gaucher Disease

How to Build Bone Density: 5 Bone-Strengthening Exercises

Exercise is great for just about everyone. Your heart, muscles, joints, and lungs are meant to work, whether you run ultramarathons or have a seated stretching routine. For people living with Gaucher disease, exercise is particularly vital and can help build bone density. Weight-bearing, flexibility, and bone-strengthening exercises keep your bones, muscles, and joints strong…. Read More »

Topics: About Gaucher Disease

4 Natural Ways to Boost Your Immune System: Managing Inflammation and Gaucher Symptoms

Everyone experiences inflammation, the body’s response to stress, illness, and other external inputs. People living with Gaucher disease may have a higher level of inflammatory response because their bodies are constantly working to manage the disease. The good news: You can help your body become more resilient. Dr. Robin Ely explains the role inflammation plays… Read More »

Topics: About Gaucher Disease

The Importance of Self-Care Amid COVID-19: Coping With Stress in the Time of COVID-19

Stress always exists, but at times like now, amid the coronavirus pandemic, it’s a global phenomenon. As you watch events unfold in your communities and around the world, you aren’t alone if you feel lonely, anxious, and worried. In one way or another, everyone on the planet has been affected—directly or indirectly—by COVID-19, the disease… Read More »

Topics: About Gaucher Disease, Living With Gaucher Disease

Gene Therapy for Gaucher Disease: AAV, Lentivirus, & More

Gaucher disease occurs when people have mutations, or changes, in a gene called GBA. The GBA gene acts like a switch that controls the way your body breaks down a specific lipid (fat), glucocerebroside. The “switch” is faulty in people with Gaucher disease. That prevents cells from making functional glucocerebrosidase (GCase), the enzyme that breaks… Read More »

Topics: About Gaucher Disease

Gaucher Disease and Myeloma: What Patients and Families Should Know

Two thirds of Gaucher patients have some evidence of bone disease that is directly related to the disease. Gaucher bone disease may lead to serious orthopedic complications but it is not a cancerous condition. Doctors know that a much smaller number of people with GD can develop multiple myeloma, a malignancy of bone marrow plasma… Read More »

Topics: About Gaucher Disease, Gaucher Disease Treatment, Living With Gaucher Disease

Gaucher Disease: How Peer Support and Empowerment Can Help

Rare diseases can affect all aspects of a patient’s life, not just physical health. If you have Gaucher disease, it’s not just about finding a treatment that’s effective. Finding supportive resources, including peers who also live with the disease, can help you cope with your condition—and empower you to take charge of your health. Aviva… Read More »

Topics: About Gaucher Disease, Living With Gaucher Disease

What Is Our Impact? – NGF 2019 Impact Report

In our 2019 Impact Report, we take a look at some of our major achievements in heightening awareness of Gaucher Disease. Read about how NGF has connected with nearly 2,000 individuals who then received screening or testing for Gaucher with no out-of-pocket expenses; how millions of people are engaging with our content online; and how… Read More »

Topics: About Gaucher Disease, Gaucher Disease Research, Gaucher Disease Treatment

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