As of 4/12/2021. All information contained is provided with input from physicians on the NGF Medical Advisory Board.
Medical understanding of SARS-CoV-2, the novel coronavirus that causes COVID-19, is evolving. To maintain your optimal health, follow your local guidance and CDC COVID-19 recommendations.
A Word of Caution About COVID-19 Information
Any government agency or organization website—including this one—provides only general information. Not all of this information will apply to you. Your Gaucher specialist is the best person to advise you.
Every Gaucher patient needs an individualized care plan, not only for GD, but for all other concurrent illnesses, including COVID-19. Your treating physician can discuss your individual risk and tailor risk-reduction strategies to your needs.
You should continue all treatments and medical management of lysosomal disorders, including Gaucher disease. Before making any changes to your medical regimen, or if you need care for COVID-19-related illness, seek advice from both your Gaucher specialist and your primary care provider (PCP).
The FDA has issued an Emergency Use Authorization (EUA) for two mRNA vaccines (Pfizer & BioNTech; Moderna) and one modified adenovirus vaccine (Johnson & Johnson Janssen). The CDC Interim Clinical Considerations indicate that the vaccines may be administered to persons with underlying medical conditions who have no contraindications to vaccination.
A panel of Gaucher specialists from Gaucher treatment centers have addressed the many questions regarding the new COVID-19 vaccines.
What Precautions Should People with Gaucher Disease Take Amid the COVID-19 Pandemic?
Follow all CDC and local health department guidance. Additionally:
Stay at home. Follow CDC’s guidance.
If your Gaucher specialist indicates you are a high-risk individual, follow the CDC guidance for high-risk individuals.
Continue all prescribed Gaucher medications and treatments. Do not change your treatment without consulting your doctor.
Consult your Gaucher specialist about any concerns.
Ensure staff providing infusions wear personal protective equipment (PPE).
Ask about telehealth appointments.
Wear a mask to protect yourself and others.
Centers for Disease Control and Prevention (CDC) highly recommends getting your flu shot.
Wash your hands to help stay healthy and prevent the spread of infection.
Stay home as much as possible. Work from home if you can.
Practice social distancing.
Do not visit a healthcare facility without first speaking to your doctor.
Have food brought to your home by delivery, family, or social networks if you can.
Visit public places at off-peak hours.
Take advantage of special hours for high-risk groups.
Take care of your emotional and mental health.
Eat healthy, get enough sleep, and exercise as regularly as you can.
Take breaks from watching, listening to, or reading the news, including social media.
Connect with others via phone and video—social distancing does not mean disconnecting!
Engage in enjoyable activities.
Be kind to yourself and others.
Medical understanding of SARS-CoV-2, known as COVID-19, is evolving. To maintain your optimal health, keep apprised of both your local as well as the CDC recommendations for Community Mitigation Strategies.