What Precautions Should People with Gaucher Disease Take Amid the COVID-19 Pandemic?
Follow all CDC and local health department guidance. Additionally:
Stay at home. Follow CDC’s guidance.
If your Gaucher specialist indicates you are a high-risk individual, follow the CDC guidance for high-risk individuals.
Continue all prescribed Gaucher medications and treatments. Do not change your treatment without consulting your doctor.
Consult your Gaucher specialist about any concerns.
If you receive infusions at a healthcare facility, ask if you are eligible for home infusions.
Ask about telehealth appointments.
Do not visit a healthcare facility without first speaking to your doctor.
Seek testing ONLY if instructed by your doctor.
Be patient—healthcare providers are working tirelessly to care for patients and answer questions.
Practice social distancing.
Stay home as much as possible. Work from home if you can.
Stay at least 6 feet away from anyone outside your household or experiencing symptoms.
Have food brought to your home by delivery, family, or social networks if you can.
Visit public places at off-peak hours.
Take advantage of special hours for high-risk groups.
Take care of your emotional and mental health.
Eat healthy, get enough sleep, and exercise as regularly as you can.
Take breaks from watching, listening to, or reading the news, including social media.
Connect with others via phone and video—social distancing does not mean disconnecting!
Engage in enjoyable activities.
Be kind to yourself and others.
The NGF Medical Advisory Board recommends individuals who have Gaucher consult with their treating physician prior to beginning to re-engage with daily community activities as states ‘re-open’.