COVID-19

COVID-19 Precautions for Gaucher Patients

What Precautions Should People with Gaucher Disease Take Amid the COVID-19 Pandemic?

As of 5/20/2021. All information contained is provided with input from physicians on the NGF Medical Advisory Board.

Medical understanding of SARS-CoV-2, the novel coronavirus that causes COVID-19, is evolving. To maintain your optimal health, follow your local guidance and CDC COVID-19 recommendations.

A Word of Caution About COVID-19 Information

Any government agency or organization website—including this one—provides only general information. Not all of this information will apply to you. Your Gaucher specialist is the best person to advise you.

Every Gaucher patient needs an individualized care plan, not only for GD, but for all other concurrent illnesses, including COVID-19. Your treating physician can discuss your individual risk and tailor risk-reduction strategies to your needs.

You should continue all treatments and medical management of lysosomal disorders, including Gaucher disease. Before making any changes to your medical regimen, or if you need care for COVID-19-related illness, seek advice from both your Gaucher specialist and your primary care provider (PCP).

The FDA has issued an Emergency Use Authorization (EUA) for two mRNA vaccines (Pfizer & BioNTech; Moderna) and one modified adenovirus vaccine (Johnson & Johnson Janssen). The CDC Interim Clinical Considerations indicate that the vaccines may be administered to persons with underlying medical conditions who have no contraindications to vaccination.

A panel of Gaucher specialists from Gaucher treatment centers have addressed the many questions regarding the new COVID-19 vaccines.

Follow CDC & Your Local Guidelines.
Get Vaccinated. Find a Vaccine at www.vaccines.gov/search/.
Consult your Gaucher specialist about any concerns.
Continue all prescribed Gaucher medications and treatments. Do not change your treatment without consulting your doctor.
Wash your hands to help stay healthy and prevent the spread of infection.
If you haven’t been vaccinated yet, continue to wear a mask that covers your mouth and nose to protect yourself and others
If you haven’t been vaccinated yet, continue to practice social distancing.
Eat healthy, get enough sleep, and exercise as regularly as you can.
Be kind to yourself
and others.

Additional Coronavirus Tips for Gaucher Patients

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