What Precautions Should People with Gaucher Disease Take Amid the COVID-19 Pandemic?

As of 1/31/24. All information contained is provided with input from physicians on the NGF Medical Advisory Board.

Medical understanding of SARS-CoV-2, the coronavirus that causes COVID-19, continues to evolve. To maintain your optimal health, follow your local guidance and CDC COVID-19 recommendations.

No single precaution is foolproof against COVID-19. For the best protection, use a layered approach including updated vaccines, well-fitting high-quality masks, and improved ventilation.

 Each intervention has some weaknesses, but when used together, they complement each other. This approach is known as the “Swiss-cheese model.”

A Word of Caution About COVID-19 Information

Any government agency or organization website—including this one—provides only general information. Not all of this information will apply to you. Your Gaucher specialist is the best person to advise you.

Every Gaucher patient needs an individualized care plan, not only for GD, but for all other concurrent illnesses, including COVID-19. Your treating physician can discuss your individual risk and tailor risk-reduction strategies to your needs.

You should continue all treatments and medical management of lysosomal disorders, including Gaucher disease. Before making any changes to your medical regimen, or if you need care for COVID-19-related illness, seek advice from both your Gaucher specialist and your primary care provider (PCP).

The FDA has approved two mRNA vaccines (Pfizer-BioNTech and Moderna) and issued an Emergency Use Authorization (EUA) for one protein subunit vaccine (Novavax). The CDC Interim Clinical Considerations indicate that the vaccines may be administered to persons with underlying medical conditions who have no contraindications to vaccination. Everyone age 6 months and older is eligible to receive at least one dose of the updated 2023-2024 COVID-19 vaccine.

The Johnson & Johnson Janssen COVID-19 vaccine is no longer available in the U.S. as of May 3, 2023.

A panel of Gaucher specialists from Gaucher treatment centers have addressed the many questions regarding the new COVID-19 vaccines.

Follow CDC & Your Local Guidelines.
Get the updated 2023-2024 COVID-19 vaccine. Find a vaccine at www.vaccines.gov/search/.
Avoid the 3Cs: Spaces that are closed, crowded or involve close contact.
Wear a mask to protect yourself against COVID-19 and other respiratory viruses.
Open windows or use air purifiers to improve air flow indoors.
Consult your Gaucher specialist about any concerns.
Continue all prescribed Gaucher medications and treatments. Do not change your treatment without consulting your doctor.
Wash your hands to help stay healthy and prevent the spread of infection.
If you are not vaccinated and live in an area with a high level of COVID-19, continue to practice social distancing.
Eat healthy, get enough sleep, and exercise as regularly as you can.
Be kind to yourself and others.

Additional Coronavirus Tips for Gaucher Patients


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