Paying for Gaucher disease treatment, including insurance co-pays, travel and unexpected out-of-pocket expenses, is a challenge for most families. Fortunately, resources exist to help ease your burden.
Several nonprofits offer financial assistance for patients and families with a demonstrated financial need. You can find more information about programs outside the NGF on the organizations’ web pages.
NeedyMeds is a nonprofit information resource that helps people find assistance affording their medication and related healthcare costs. NeedyMeds aims to be a comprehensive source of information on programs that help people with problems paying for medication and healthcare.
National Organization for Rare Disorders (NORD) RareCareSM
The National Organization for Rare Disorders (NORD) RareCareSM program helps patients get lifesaving or life-sustaining medication they cannot otherwise afford. These programs provide:
- Financial assistance with insurance premiums and co-pays
- Diagnostic testing assistance
- Travel assistance for clinical trials or consultation with disease specialists
Patient Airlift Services (PALS)
Patient Airlift Services (PALS) has successfully provided more than 25,000 free flights for pediatric and adult patients since inception in 2010. The most common feedback from patients, advocates, family members, and medical professionals is that they didn’t know “charitable aviation” existed. Whether someone is looking for a diagnosis, a secondary opinion, treatment options, clinical trials, or annual scans-care, distance from home should not be a burden.
The Patient Access Network (PAN) Foundation
The Patient Access Network (PAN) Foundation is an independent nonprofit organization dedicated to helping insured people who have chronic, critical and rare diseases. The organization provides financial support for out-of-pocket costs for their prescribed medications.
Accessia Health provides financial support and guidance for qualified patients with specific, rare chronic diseases. They also offer a variety of free legal services for certain rare disease communities.
Pharmaceutical Company Resources
All of the pharmaceutical companies that offer Gaucher disease treatment also provide patient resources like financial support and help navigating insurance coverage. These companies include: