We have gathered useful resources for patients with Gaucher disease and their families to provide additional support, information and inspiration.
The National Gaucher Foundation (NGF) website offers information about:
- Resources to build a comprehensive Care team
- Connecting with others who have Gaucher disease
- Financial support to help cover the cost of treatment
- Rare disease advocacy organizations
- Resources related to prenatal screening and genetic counseling for Gaucher disease.
We also provide resources where you can learn about:
- Living with Gaucher Disease
- Optimizing your Health
- Prevail Therapeutic PROCEED Clinical Study: Now open to patient enrollment
- Lysosomal Center
- Angel Flight NE
Join the NGF Facebook Community and connect with Gaucher patients and their families sharing their stories, offering support, and asking for help.
