Category: Insurance

Repealing the Affordable Care Act & The Effects It Can Have

What is the Affordable Care Act The Affordable Care Act (ACA) represents one of the most substantial changes to our nation’s healthcare policy since the creation of Medicare and Medicaid. The legislation was first introduced and approved by a Democratic congressional majority. The Obama administration signed the ACA into law on March 23, 2010. When… Read More »

Drug Pricing, a Complex Issue Affecting the Rare Disease Community

Orphan drugs are expensive, and recent changes to the Orphan Drug Act may up the price even more. Find out how to take action and make your voice heard.

[Podcast] Healthcare Legislation: Where We Are, And What’s Coming Next

You’re probably confused by the recent healthcare industry turmoil. In our second podcast, we learn more about how bills are passed and what’s going on now.

[Podcast] Gaucher Disease and U.S. Health Insurance

This month’s premier podcast is focused on the basics of U.S. health insurance and how it affects Gaucher patients and their families. We spoke to Aviva Rosenberg, a healthcare attorney from Pittsburgh, Pennsylvania. She is passionate about educating people on genetic diseases and screening, as well as sharing her journey with Gaucher disease, and being… Read More »

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