NGF Blog

Blog / About the National Gaucher Foundation

World Symposium 2026: Dr. Ely’s Journal

I recently attended the 2026 WORLDSymposium in San Diego, which... Read more

Dr. Chirwa and colleagues
Blog / Gaucher Disease Diagnosis

Gaucher Disease Diagnosis in Zambia: One Doctor’s Journey With NGF

For doctors in resource-limited settings, diagnosing and accessing treatment for... Read more

Person wearing athletic gear and shorts, squatting down and clutching their shin, which is glowing red.
Blog / About Gaucher Disease

Bone Crises in Gaucher Disease: What You Need to Know

Gaucher disease affects bone function in several ways. Bone crises—excruciating... Read more

Blog / About the National Gaucher Foundation

Video: Dr. Robin Ely Speaks to Sanofi Representatives, Physicians

NGF co-founder and Clinical Director of the NGF Global Diagnostic... Read more

Doctor sitting at a desk, giving advice to a patient. Both the doctor and the patient are female presenting.
Blog / About Gaucher Disease

Growing Up with Gaucher: Teens Navigating Life with a Rare Disease

“For me, medicine is not just a profession,” says Dr.... Read more

Blog / About Gaucher Disease

Gaucher Journey: Tina Chimavu

The following story, told by Tina Chimavu, is slightly edited... Read more

Blog / Patient Journeys

Gaucher Journey: Adrianna Baker

Adrianna had symptoms when she was young, and after her sister was diagnosed with Gaucher disease, she realized she had it, too.

Arm made out of supplements flexing
Blog / About Gaucher Disease

Combine Exercise With Nutritional Supplements to Relieve Your Inflammation

Combining physical activity with targeted nutritional supplements can significantly enhance muscle health and reduce inflammation.

Blog / Gaucher Disease Research

State-of-the-Art Bone Imaging with Australia’s Dr. Roger Zebaze

Dr. Robin Ely of NGF recently traveled to Melbourne, Australia, where she visited Monash University and Dr. Roger Zebaze.

Blog / Patient Journeys

Gaucher Journey: Kammeron R.

Kammeron always thought she was a carrier for Gaucher disease – but realized she needed to be her own advocate to get an official diagnosis.

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