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NIH Clinical Center

  • Comprehensive Treatment Center

    Center provides infusions; Gaucher Specialist(s) and Genetic Counseling for comprehensive care.

  • Treatment Center

    Center provides infusions & Gaucher Specialist(s) for care.

Contact

9000 Rockville Pike

Bethesda, MD20892

sidranse@mail.nih.gov

301-496-0373

Additional Information

Type of Center
Treatment Center

How many Gaucher patients are treated at your facility?
26 or more

The majority of Gaucher patients treated at the center are:
Children, Adults

Does your treatment center only offer infusions?
No

What is the average patient wait time from arrival to receiving infusion?
N/A

Which of the following services do Gaucher patients receive at your treatment center?

  1. Appointments with a Gaucher specialist

Additional Information

*At NIH, patients with all forms of Gaucher disease are evaluated to better understand the disorder. Patients must provide informed consent for participation in a research study. Clinical and research samples are collected and may be stored for future use. Invited participants have thorough examinations and testing performed at no cost. Research areas include the link between Gaucher disease and Parkinson disease both in Gaucher and Parkinson patients and carriers. While physicians at this Center are Gaucher specialists, ongoing treatment of patients is only provided to those participating in their research studies. For more information, please contact the lab using the contact information listed below.

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