Madelyn Schloss was diagnosed with Gaucher at age six and wants to connect with newly diagnosed kids. Her school had a learning festival for which survival was the theme and included various presenters. As one of those presenters, Madelyn discussed Gaucher disease. Madelyn is also thinking about going to different schools to speak. She would like to help kids be better prepared to deal with Gaucher disease, infusions and other related issues.
(You need an up-to-date browser to see this video.)