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Real Life Gaucher Stories

Click here to submit your personal story about you or family members living with Gaucher disease.

Brave Kaitlyn wins for proud mum who got out of her sickbed to see dance star daughter

Going with the flow: Windham boy lives with rare genetic disorder
Reprinted with permission from The Windham Independent

A Tribute to Emma Grunstein’s Family

Genetic Awakening

Shauna Mangum’s Extraordinary Marathon Despite Gaucher Disease

Little Miss Hannah's Fight To Live

Exhibit showcases disorders once thought uniquely Jewish

David, Our Angel - Our Love

Mother Shares Her Son's Successes

They Had No Idea What Was Wrong With Me


Dr. Wayne Rosenfield's story

"Single most informative vehicle I have encountered"

"Willing to be a public advocate"

Gaucher disease: Painful disorder, painful decisions

No cure, but Gaucher is treatable disease

Lack of One Enzyme Triggers Illness

Artist Depicts Pain of Genetic Ailment

Many With Gaucher, Unaware of Disease

Hidden Danger: A Jewish genetic disease comes out of the closet

Awareness First Step Toward Treating Gaucher: article by TV Producer and Gaucher Patient, Mr. Michael Margolis

Minus two organs, Gaucher patient feels lucky

Thank you very much for your support