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Who we are

The National Gaucher Foundation (NGF) is the only independent, non-profit organization of its kind serving the Gaucher community. The NGF, a non-profit organization established in 1984, has funded millions of dollars toward the cause, treatments and cure for Gaucher Disease. We are an objective, independent voice of the Gaucher community, dedicated to providing leadership, outreach and innovative thinking. We offer a wide range of programs and resources to meet the ever-increasing needs of individuals and families affected by this disease.

What we do

There’s no other organization in the US that provides the services we do. The NGF funds research, grants financial assistance, promotes education and awareness, supports legislation and provides vital programs. Through our National Gaucher Care Foundation, the CARE Program and the Care+Plus Program, we extend critical financial assistance to individuals with Gaucher Disease. Supporting medical and lay-community outreach, we host live Webinars, national conferences and patient forums. Additionally, our national and regional marketing programs promote ongoing awareness of Gaucher disease.

• Spring 2012 Newsletter Online Donor Issue NGF members only - Click here to read • Pfizer and Protalix BioTherapeutics Announce FDA Approval of ELELYSO™ for the Treatment of Gaucher Disease - Read more • Apples, Oranges, Cancer and Gaucher Video An educational, hopeful and heartfelt video about cancer and Gaucher disease as seen through the eyes of Rosina Papantonio who has devoted 13 years of her life to the National Gaucher Foundation. - Watch video here • Genzyme Patient Advocacy Leadership Award (PAL Award) - Read more here   • Genzyme Launches genzymerarecommunity.com This website is intended to serve as a new channel of communications between our global patient advocacy team and individuals like you - Read more here • Genetic Alliance Announcements: - Call for Personal narratives of genome-scale testing, - link to webcast of Genetic Testing Summit, and - Reporter wishes to speak to people who haven't had their genetic data returned to them but would like to have it. • NGF Mobile Web Site - Check out our new smartphone/tablet mini web site. Go to www.gaucherdisease.org using your mobile device - or click here. Follow Us On: Gaucher and Rare Disease Library gaucherdisease@yahoo groups.com A free discussion group for individuals with Gaucher disease. Shop online today, while raising funds for Gaucher! Tweet