In 1993, the National Gaucher Foundation (NGF) recognized the need for financial assistance in the Gaucher community. We created the National Gaucher CARE Foundation (NGCF) to help relieve this financial burden. The NGCF provides financial assistance for people with Gaucher disease and their families through the CARE Programs.
Assistance is available to patients with Gaucher disease who are US citizens residing in the United States and can demonstrate extraordinary financial hardship in paying for eligible Gaucher-related expenses. It does not matter which drug your physician has prescribed, or whether you are currently on therapy.
The NGCF’s CARE Program offers assistance with insurance premiums. This program helps patients and families pay for insurance premiums. Eligible insurance premiums include:
- Primary or secondary insurance premiums (or both)
- Medical premiums
- Pharmacy premiums
The NGCF may provide assistance in paying either single or family premiums if the individual who has Gaucher disease is on the family policy. There is a $24,000 maximum amount payable in a one-year period ($2,000/month). The CARE program is based on the calendar year — January 1 thru December 31.
Eligibility criteria: Patients with Gaucher disease and their families living in the United States who demonstrate an extraordinary financial hardship and cannot afford their insurance premiums. The program is currently accepting applications.
The NGF utilizes the Federal Poverty Level Guidelines in determining financial eligibility and considers applicants at 300% or below the FPL as having ‘extraordinary financial hardship’. Applicants with an FPL between 300% – 400%, are required to provide additional documentation to demonstrate extraordinary financial hardship beyond income level. Prior to applying, use the Federal Poverty Level Calculator to determine if you meet the financial eligibility criteria.
Applying for Financial Assistance for the CARE Programs
Applications for CARE Programs grants are accepted on a rolling basis throughout the calendar year, beginning in early November for the upcoming calendar year. Grants made by eligible applicants may be denied, in part or in full, due to requests exceeding available funds.
NO FURTHER APPLICATIONS ARE BEING CONSIDERED FOR THE 2021 CALENDAR YEAR. THE CARE PROGRAMS FUNDING HAS BEEN FULLY ALLOCATED FOR THE YEAR.