Samantha Rubenstein serves as the National Gaucher Foundation’s (NGF) Vice President of Education, Awareness and Patient Advocacy and is the lead Optimal Health Advisor (OHA) for the NGF. In these roles, she helps the Foundation with community outreach and educational initiatives as well as reaches out to individual patients connecting them with case specific resources and care.
Samantha possesses years of experience working with school aged children and their families, counseling and connecting them with needed services to optimize educational goals and overall academic and social emotional success. These counseling skills easily translate to our Gaucher community as she holds a deep understanding of the need to be linked to essential supports.
Growing up with 3 cousins who were diagnosed very early on with Gaucher disease and treated with Enzyme Replacement Therapy from its earliest inception and availability provides her with an incomparable perspective and sensitivity.
Samantha is New York State certified with a Master’s degree in social work from Columbia University. She has extensive training in social work advocacy which, gives her a unique perception on the needs of patients. “My personal goal is to connect all patients living with Gaucher disease to the best resources and services available to them.”
Married with three children, Samantha graduated from New York University with a BS degree in Communications, from New York University with a Master’s degree in Educational Psychology, and from Columbia University School of Social Work (LMSW) in 2012 and resides in New York City.