Events

Sep 24

6:30 pm, September 24, 2019 | Mancy’s Italian Grill - 5453 Monroe Street – Toledo, OH 43623

Takeda

Ambassador-to-Patient education programs are sponsored by Takeda (Shire).  A Patient Ambassador will be speaking on behalf of Shire.  Patients can register for an event by calling 877-761-7927.

Community Event

VPRIV Ambassador-to-Patient

Sep 25

6:30 pm, September 25, 2019 | Maggiano’s Little Italy – The Shops at Riverside, 70 Riverside Square – Hackensack, NJ 07601

Shire

Ambassador-to-Patient education programs are sponsored by Shire.  A Patient Ambassador will be speaking on behalf of Shire.  Patients can register for an event by calling 877-761-7927.

Nov 25

2:00 pm, November 25, 2019 | Marriott of Fairfax Virginia at Fair Oak

LDRTC

The Lysosomal & Rare Disorders Research & Treatment Center (LDRTC) will be offering a half day Clinic  for patients with Gaucher disease, where internationally renowned experts will consult on particularly challenging cases. Additionally, an expert radiologist will be available to review the x-rays, DEXA scans and other imaging studies. If you would like to be considered… Read More »

Stay in Touch with NGF

Learn about the latest research, news and events.