Community Event
VPRIV Ambassador-to-Patient program
6:30 pm, September 24, 2019 | Mancy’s Italian Grill - 5453 Monroe Street – Toledo, OH 43623
Takeda
Ambassador-to-Patient education programs are sponsored by Takeda (Shire). A Patient Ambassador will be speaking on behalf of Shire. Patients can register for an event by calling 877-761-7927.
Community Event
VPRIV Ambassador-to-Patient
6:30 pm, September 25, 2019 | Maggiano’s Little Italy – The Shops at Riverside, 70 Riverside Square – Hackensack, NJ 07601
Shire
Ambassador-to-Patient education programs are sponsored by Shire. A Patient Ambassador will be speaking on behalf of Shire. Patients can register for an event by calling 877-761-7927.
Community Event
2019 Genetic & Rare Immune Disorders Symposium (GRIDS)
2:00 pm, November 25, 2019 | Marriott of Fairfax Virginia at Fair Oak
LDRTC
The Lysosomal & Rare Disorders Research & Treatment Center (LDRTC) will be offering a half day Clinic for patients with Gaucher disease, where internationally renowned experts will consult on particularly challenging cases. Additionally, an expert radiologist will be available to review the x-rays, DEXA scans and other imaging studies. If you would like to be considered… Read More »