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"Willing to be a public advocate"
----- Original Message -----
From: Josh Ginn
Sent: Sunday, September 18, 2005 10:02 AM
Subject: IL Gaucher Patient Advocacy meeting
Hello Tanya and Sharon!
Thank you for sending the invitation for the Gaucher Patient Advocacy meeting in IL next week. I would like to attend, however I will be unable to make the trip due to my school schedule.
I hope you have a GREAT time at the meeting while I’m making the most out of my studies in school. J
On the flyer, I saw Sharon’s e-mail address, so I went to www.gaucherdisease.org and saw the videos about Stacey Feuer. Nice job! I greatly appreciate the work she and everyone else is doing to help others. |
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– I’m very blessed and thankful that the drug was made during a critical part in my life, and that I started taking the drug with never having a bone crisis. – I hope others with Gaucher will have the same opportunity to be in as good of health as I am in.
I’d like to meet Stacey sometime and am willing to be a public advocate for helping others.
Please tell Stacey “Hello!” and that I liked her video.
Have a great day!
Josh
P.S. Thank you Tanya and Sharon for all of the work you are doing for Gaucher patients. It makes a huge difference to us to know that there are people like you out there whom are enthusiastically pulling for us.
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