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Gaucher Disease

Gaucher Disease Information

• Testing
• What is?
• Research & Trials
• Symptoms
• Treatments
• Prevalence
• Clinical Course

Gaucher Type 2 and 3

Research & Trials www.clinicaltrials.gov

Resources

Gaucher Registry Info/Data

Support Programs

• Care Program
• Care + Plus Program
• Genetic Disease Online Discussion Group

Lysosomal Storage Disorders

NGF Brochure

Spanish Gaucher Disease Brochure

Treatments / Pharmas

GD Patient Prioritization Treatment Doc

Actelion

• Drug Information
• Town Hall Meeting Information
* Oct. 8, 2009 - Minutes
• Other Information
• Press Releases

Genzyme

• Treatment Locations
• ERT: Cerezyme®
• Clinica Trial: Eliglustat tartrate
• Patient Correspondence
* Guidance to the Gaucher Community 11/23/09
* Cerezyme® Restart Patient Letter 11/24/09
• Cerezyme® Patient Information
* Cerezyme® Shipment Update (2/10/10)
* Cerezyme® Supply FAQs
* Cerezyme® Patient Brochure
* Cerezyme® Patient Insert
• Town Hall Meetings
• Other Information
• Press Releases

Protalix / Pfizer

• Treatment Locations
• Drug Information
• Other Information
• Press Releases

Shire

• Treatment Locations
• Drug Information
• Pricing Initiative / Co-Pay Assistance
• Other Information
• Press Releas

News

News at a Glance

Past News

NGF Newsletters

Horizons Newsletters

Share Your Stories & Comments

Meetings / Events

Meetings Calendar

Tentative NGF Patient Meeting Schedule for 2010

NGF Online Awareness Event

Register for Meetings

• Patient Meeting

Meeting / Event Evaluation Form

EOH Exhibit showcases disorders once thought uniquely Jewish

The Pioneers Reunion 2007

NGF's Photo Album

Programs

NGF Membership

NGF Finacial Assistance Programs

Gaucher Mentor Program

Genetic Disease Discussion List

Gaucher Chat / Ask Jeff

Exercises for Everyone

• NGF & Suzanne Krupska
• It's all about Posture
• Balance: Prevention of Falls
• It's all about the Bones
• Get to the Core
• The Multi-Faceted Workout
• The Key to Longevity…Exercise!
• Osteoporosis – What You Should Know

CaringBridge

Care Pages

Medical IDs 20% Discount

Media

Audio Files

• NGF Conference 2007
• Screening & Testing For JGDs - Dr. Adele Schneider / Zev Brenner
• Screening & Testing For JGDs - Dr. Adele Schneider / Shalom USA
• Gaucher Symptoms, Testing and Treatment - Rhonda Buyers / Shalom USA
• A family affected by Gaucher Disease - Andrea Trombino/Shalom USA
• Gaucher Testing/Treatment/History of NGF - Rhonda Buyers / Shalom USA
• Cause of Gaucher Disease/history of research - Dr. Roscoe Brady / Shalom USA

Video Files

• Emily's Journey with Gaucher (animation)
• Little Miss Hannah
• Movement for Life
• Oh My Aching Bones - Dr. Gregory Graboswki
• Therapeutic Goals & Management of Gaucher Disease - Dr. Pram Mistry
• Scarred For Life Video of Ted Meyer Art Exhibit
• Living With Gaucher Disease - Cynthia Frank/Phil Blazer Show
• Educating Others About Gaucher Disease- Stacey Feuer and Zev Brenner
• A Message to Elijah/Gaucher video hosted by Elliot Gould
• Linda Rubenstein Interview on City Line News

Web Mettings

• Web Meetings Home Page

Media Archive

Audio Archive

• NGF 60 Sec. Gaucher Radio Comercial

Video Archive

• EOH Museum Exhibit Video
• Dr. Barry Rosenbloom Gaucher TV commercial
• Dr. Joel Charrow Gaucher TV commercial
• Dr. Roscoe Brady Gaucher TV commercial

Legislations

Abolish lifetime caps Now!

Ryan Dant Healthcare Opportunity Act / H.R. 5748

Health Insurance Coverage Protection Act

Genetic Information Nondiscrimination Act

COBRA Insurance Coverage

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