National Gaucher Foundation - Gaucher Disease
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Privacy Policy

This is the web site of National Gaucher Foundation.

Our postal address is:
National Gaucher Foundation
61 General Early Drive
Harpers Ferry, WV 25425

We can be reached via e-mail at ngf@gaucherdisease.org or you can reach us by telephone at 877-649-2742.

For each visitor to our Web page, our Web server automatically recognizes no information regarding the domain or e-mail address.

We collect the e-mail addresses of those who post messages to our bulletin board, the e-mail addresses of those who communicate with us via e-mail, the e-mail addresses of those who make postings to our chat areas, information volunteered by the consumer, such as survey information and/or site registrations.

The information we collect is used for internal review and is then discarded.

With respect to cookies: We use cookies to record session information, such as items that consumers add to their shopping cart, record user-specific information on what pages users access or visit, customize Web page content based on visitors' browser type or other information that the visitor sends.

If you do not want to receive e-mail from us in the future, please let us know by sending us e-mail at the above address, calling us at the above telephone number, writing to us at the above address.

With respect to Ad Servers: We do not partner with or have special relationships with any ad server companies.

From time to time, we may use customer information for new, unanticipated uses not previously disclosed in our privacy notice. If our information practices change at some time in the future we will post the policy changes to our Web site to notify you of these changes and we will use for these new purposes only data collected from the time of the policy change forward. If you are concerned about how your information is used, you should check back at our Web site periodically.

With respect to security: When we transfer and receive certain types of sensitive information such as financial or health information, we redirect visitors to a secure server and will notify visitors through a pop-up screen on our site.

If you feel that this site is not following its stated information policy, you may contact us at the above addresses or phone number.