National Gaucher Foundation - Gaucher Disease
Slideshow Image 1
Slideshow Image 2
Slideshow Image 3
Welcome to the National Gaucher Foundation Inc’s.
National Gaucher Conference
November 9 - 10, 2010


Don’t miss our 30th Anniversary, Gaucher Conference, Gala
Dinner, Awards Ceremony and announcement of our
Video Contest winners.



Print Gaucher Conference ​information to give to others.

Join the National Gaucher Foundation, Inc. as we celebrate our 30th Anniversary at our National Gaucher Conference on November 9 and 10, 2014. The two-day Conference will feature the top researchers and physicians in Gaucher disease discussing the latest news and progress. Topics of discussion will include drug therapy news, bone disease, Parkinson’s Disease, Type 1, 2 and 3 research and developments, social/psychological aspects, and many other areas of interest. We will feature physician panel discussions, Q&A sessions with top experts, and breakout groups, so there will be plenty of time to visit with physicians, friends, and other families from all over the world. *A limited number of scholarships to attend the conference are available on a first come, first served basis, so please apply early.

Conference Location and Online Registration Our Conference will be held at the Doubletree by Hilton in Bethesda, Maryland located at 8120 Wisconsin Avenue. To register online please click here: http://www.gaucherdisease.org/gaucher-conference-registration-2014.php.

The NGF negotiated a discount room rate of $109/night at the Doubletree by Hilton. Room reservations: 800-445-8667 or 301-652-2000. Please make your hotel reservations online by Thursday, October 16 in order to receive the discount. To reserve your room, please use the following link. Whether contacting the hotel by phone or via internet, please refer to meeting code NGF.

https://doubletree.hilton.com/en/dt/groups/personalized/W/WASBHDT-NGF-20141108/index.jhtml

The Doubletree by Hilton is conveniently located near two Metro stops and approximately 1 hour from three area airports: Baltimore/Washington Airport (BWI), Dulles Airport, and Reagan National Airport. The National Institutes of Health (NIH) is located less than one mile from the hotel.

Agenda The NGF appreciates your suggestions. The agenda will include topics and various issues selected by the Gaucher community, as a result of surveys and various discussions within the Gaucher medical community. Complete Agenda to follow.

Gala Celebration Dinner Make plans to join us for our Gala Celebration Dinner on November 9, 2014, to commemorate the NGF’s 30th Anniversary, as we take a look back over the last 30 years and celebrate the many accomplishments and advancements in the field of Gaucher Disease.

As one of its 30th Anniversary events, the NGF is holding a Gaucher video contest and the top three videos will be shown at the Gala dinner. Anyone with a connection to Gaucher disease may participate in this contest. Deadline for submission: August 29. For more details about the contest and how you can enter to win $500, please click on the video contest listed on our home page.

Live Streaming of Conference As with our 2010 conference, the NGF will be live streaming the Conference, in order to give those unable to attend the opportunity to hear and see it live. Callers and those using social media will be able to ask and have answered the questions on their mind. Upon its conclusion, the entire conference will be posted on the NGF’s website for those who missed it. Additionally we will be send- ing messages out via social media during breaks and after each day’s conference to keep you abreast of what’s going on. Join in the discussion and we will use some of your comments and questions during the Q & As after each segment or topic.

Program Book Ads If you are connected in any way with Gaucher disease or other rare diseases we welcome your ad. The invitation is extended to those who have a rare disease, families, friends and companies, institutions and corporations who provide goods and services to the rare disease community. Please click here for more information regarding sponsorship levels, payment and additional information for program book specs. Ad Deadline: Monday, September 22. Full page color: $250 Half page color: $150. Specs: 10” deep x 7” wide. Email your PDF to rosina@gaucherdisease.org and please use Conference Program ad in the subject.

NIH Tour There will be a Tour of National Institutes of Health (NIH) Clinical Center Monday, November 10 - 2:30 to 4:00 PM. Limited spaces are available and you must pre-register for the Tour. The tour is limited to 20-25 people and lasts approximately 1 hour. No Walk-ons permitted. Tour guests will need to leave the hotel at 2 PM, to be at the NIH Gateway Center/Security gate by 2:30 PM. NIH is within walk- ing distance from the DoubleTree Hotel (0.5 miles). Should you need assistance, the NGF will make available a van or taxi.

Sponsorships The NGF invites anyone connected to the Gaucher community to participate in a sponsorship. Whether it’s a company, individual, family or friend there are sponsorships available. Companies, institutions, foundations and corporations who provide goods and services to the Gaucher community are encouraged to be a sponsor of this our 30th Anniversary National Gaucher Conference. Thank you for your support.
Click here for sponsorship levels and more information.

*Should you need assistance for the tour, information about the conference, or a scholarship to attend the conference, Please contact Sharon Adams, the NGF’s Associate Director at Sharon@gaucherdisease.org or 404-797-2797.