Children’s National Health System Announces the Creation of First-of-its-Kind Rare Disease Institute

The National Gaucher Foundation applauds Children’s National Health System for its creation of the Children’s National Rare Disease Institute (CNRDI). Developing standards of care for patients with rare diseases is essential. Coupling this focus along with knowledge gathering and rare disease research will enhance the care this population receives. The NGF is committed to assisting patients with Gaucher disease and their families with achieving and maintaining their optimal health as well as efforts to increase physicians knowledge base about Gaucher disease to decrease the average time it takes for patients to obtain an accurate diagnosis. The NGF looks forward to expanding its relationship with CNMC to include CNRDI and continue to enhance the lives of those affected by Gaucher disease.

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