NGF Mentor: Louise Glickman

Louise Glickman
North Carolina
Parent of adult with Gaucher
Email: lsglickman@gmail.com

I recently retired to return to my art studio (clay and fabric/paper) and to work in areas of charitable endeavor. My special interests are children, healthcare and healthcare education, and art, especially for children in hospitals. I live in the beautiful mountains of Asheville in Western North Carolina with my partner, artist Daryl Slaton and our two dogs, Kodi and Sheba, both rescue animals. You'll see more about how we support animal rescue at www.tailsofwhimsy.com. My business experience includes over 30 years of marketing, fundraising, and management training for business, government, and non-profits.

My two children were two of the original 12 individuals in Dr. Roscoe Brady's earliest trials at NIH. I was an original founder of what is currently the National Gaucher Foundation and sat on the board of NGF for many years.

My son, now 37, is the US President of a global marketing and media company headquartered in Toyko. He is married and lives in Los Angeles. My daughter Laura, 33, lives in Charlotte, NC and is product manager for institutional investment software development for Mergent, an international financial analysis company. Both continue on enzyme treatments and are doing well after much bone involvement with Gaucher. (Thank You, Dr. Mankin!!!) Laura has recently become a part of Dr. Kirshnani's Gaucher Treatment Program at the Duke Medical Center in Durham, NC. My son is treated by Dr. Barry Rosenbloom in Los Angeles, but has had treatments in the various places he has lived including Tokyo, NY, and Seattle.