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NGF Help and Request Forms

All requests and submissions are confidential and go directly to ngf@gaucherdisease.org. If you need further assistance, please contact the NGF at 800-504-3189 or email us at ngf@gaucherdisease.org

Help Menu

1) Help and information available at website
Just click on the information you are looking for and a corresponding webpage will pop up.

2) Requests to National Gaucher Foundation
Click on the request you have for the NGF, include your name, address, email and phone and submit.

Requests to National Gaucher Foundation

The following requests require your name, address, phone number and email.

Please send me (number) Gaucher informational packets.
   
I would like to have someone from the National Gaucher Foundation
call me regarding
(Calls from the NGF will be made between the hours of 9AM to 5PM.)
I would like to volunteer to help raise funds for the NGFs educational and outreach programs.
I would like to have my Gaucher story/article and photos considered for the Gaucher Community Newsletter and posting at your website.
I am interested in making a grant to the NGF to help with educational and support programs.
I am working on a project/thesis for school and would like to receive Gaucher information and need additional research information. Note: If after receiving your informational packet you still require further information, contact us at ngf@gaucherdisease.org.
*Name:
*Address:
*City:
*State: *Zip:
*Phone:
*Email:
Code:
*Code:
Please copy the code here

If you need further assistance, please contact the NGF at 800-504-3189
or email us at ngf@gaucherdisease.org

3) Gaucher Survey
This short survey is completely voluntary, but your participation may help both you and your family, as well as the NGF.

Gaucher Survey

The following survey is completely voluntary, but can help to benefit both you and the NGF.
Please take a moment to complete and submit them to the National Gaucher Foundation.
We appreciate your assistance in helping us to better serve you.

• Prior to visiting our website, had you ever heard of Gaucher disease? Yes No

• If yes, how:

NGF Ads
Family member
Friend or associate
Physician
Other

• Do you have symptoms of Gaucher disease? Yes No

• If yes, please check all that apply:

Fatigue
Anemia
Easy bruising
Nose bleeds and easy bleeding
Enlarged liver and/or spleen
Distended stomach
Bone pain
Easily broken or fractured bones
Osteoporosis

• Have you or a family member been tested for Gaucher disease? Yes No

• Has your physician indicated that you or a family member is a carrier of the Gaucher gene? Yes No

• Does Gaucher disease run in your family? Yes No Don't know

• Have you or a family member been diagnosed with Gaucher disease? Yes No

• If yes, are you/family member currently on treatment? Yes No

• What form of Gaucher are you/family member being treated for?
Type 1 Type 2 Type 3

• What is your age group?

• What is your gender? Female Male

• Email address:

• Code:

• Copy code here:

Thank you for completing this survey

If you need further assistance, please contact the NGF at 800-504-3189
or email us at ngf@gaucherdisease.org

4) National Gaucher Foundation Website Survey
This survey helps the NGF to determine how well our education and outreach programs are working, if our website is helpful and how we can better serve you.

Website Survey

The following survey is completely voluntary, but can help to benefit both you and the NGF.
Please take a moment to complete and submit them to the National Gaucher Foundation.
We appreciate your assistance in helping us to better serve you.

• How did you hear about the National Gaucher Foundation?

Saw an ad in (publication).
Saw internet banner(s) at (website).
Learned about it from a member of the medical community.
Friend, family member, business associate.
Other

• What brought you to our website?

Diagnosed with Gaucher
Concern about having Gaucher
Concern for a family member or friend
Have Gaucher and am on treatment
Other

•Did you find this website helpful? Yes No

•What other information would you like to see at our website?

• What is your age group?

• What is your gender? Female Male

• Email address:

• Code:

• Copy code here:

Thank you for completing this survey

If you need further assistance, please contact the NGF at 800-504-3189
or email us at ngf@gaucherdisease.org

Click on any of the above menus to see the information and request forms and surveys available.

 

 
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