National Gaucher Foundation - Gaucher Disease
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US Gaucher Physicians and Treatment Locations

The following centers vary in the type of services offered, as some are comprehensive Gaucher treatment centers, while others may offer more limited services such as testing and/or treatments.

STATE
ADDRESS
PHONE/FAX
MD GAUCHER/CONTACT
AL
Kirklin Clinic
2000 6th Avenue South
Birmingham
AL, 35233
Phone: 205-502-9901
Fax: 205-502-9900
Maria Descartes
AL
University of AL / Birmingham - Dept of Genetics
619 19th St South
Hugh Kaul Human Genetics Building
Birmingham
AL, 35294
Phone: 205-934-9411
Fax: 205-934-9488
Maria Descartes
AL
University of Alabama Birmingham - Dept. of Genetics
720 20th Street South
Birmingham
AL, 35294
Phone: 205-934-4973
Maria Descartes, MD
AL
USAMC-Pediatric Hematology Oncology
1504 Spring Hill Ave.
Room 5230
Mobile
AL, 36640-0130
Phone: 251-405-5115
Fax: 251-405-5120
Felicia Wilson, MD
Andretta McCove, RN, Certified Research Assistant
AR
Arkansas Children's Hospital
1 Children's Way
Little Rock
AR, 72202
Phone: 501-364-2966 or 501-364-4050
Fax: 501-364-1564
Stephen Kahler, MD
Kristine Baldwin, GC/Newborn screening
AR
Arkansas Childrens Hospital
1 Childrens Way
Slot 512-22
Little Rock
AR, 72202
Phone: 501-364-2971
Fax: 501-364-1564
G. Bradley Schaefer
AZ
Arizona Oncology Associates
6565 E. Carondelet Lane
Suite 155
Tucson
AZ, 85710
Phone: 520-886-0206
Fax: (520) 866-0844
Michael A. Boxer, MD
Amy Rogers, NP
AZ
Arizona Oncology Associates
6565 E. Carondelet Drive
Tucson
AZ, 85710
Michael Boxer
AZ
CHC Phoenix Genetics Program
St. Josephís Hospital
222 W. Thomas Road, Suite 304
Phoenix
AZ, 85013
Phone: 602-406-3611
Fax: 602-406-4363
Kirk Aleck, MD
Sarah Cox, M.S.
AZ
Pediatric Hematology / Oncology Associates
333 East Virginia Avenue
Phoenix
AZ, 85004
Phone: 602-253-5993
Jesse Cohen, MD
AZ
Phoenix Children\'s Hospital
Pediatric Hematology/Oncology
1919 E. Thomas Road
Phoenix
AZ, 85013
Phone: 602-406-3000
Kirk Aleck, MD
AZ
Southern Arizona VA Healthcare System
3601 S. 6th Avenue
Tucson
AZ, 85723
Phone: 520-792-1450
Fax: 520-838-3662
Barbara Bode
AZ
Yavapai Regional Medical Center
1003 Willow Creed Road
Prescott
AZ, 86301
Phone: 928-445-2700
Fax: 928-771-5591
Hojat Askari
CA
Alta Bates Comprehensive Cancer Center
2001 Dwight Way
Berkeley
CA, 94704
Phone: 510-204-1591
Fax: 510-204-6440
Michael Cassidy
Oleg Krijanovski
CA
Cedars-Sinai Medical Center
Medical Genetics
8700 Beverly Blvd SSB-3444 S San Vicente Blvd #1001
Los Angeles
CA, 90048
William Wilcox
CA
Cedars-Sinai Medical Center Division of Medical Genetics
8700 Beverly Blvd.
Los Angeles
CA, 90048
Phone: 310-423-6673 or 310-423-6464
Fax: 310-423-0620
William Wilcox, PhD, MD
Gladys Hernandez, Genetics Counselor
CA
Children's Hospital of Central California
9300 Valley Children's Place
Madera
CA, 93638
Phone: 559-353-6400 or 559-353-6409
Fax: 559-353-7213
Susan C. Winter, MD
Judy Phalin, RN
CA
Childrens Hospital Central California
9300 Valley Childrens Road
Madera
CA, 93636
Phone: 559-353-6400
Fax: 559-353-7213
Berkley Powell
CA
Childrens Hospital Orange County
Div Metabolic Disorders
455 South Main Street
Orange
CA, 92868
Phone: 714-532-8852
Ray Wang
CA
Department of Pediatrics Genetics Division
1801 Marengo Street
Room 1G-24
Los Angeles
CA, 90033
Phone: 323-226-3816
Soji Yano, MD
CA
Kaiser - Los Angeles
1526 N Edgemont Street
Los Angeles
CA, 90027
Phone: 323-783-4595
Rebecca Mardach-Verdon
CA
Kaiser - Los Angeles Medical Center
Metabolic Dept.
4700 Sunset Blvd. - 1st floor
Los Angeles
CA, 90027
Phone: 323-783-6970
Rebecca Mardach, MD
CA
Kaiser Foundation - San Jose
270 International Circle
San Jose
CA, 95119
Phone: 408-972-3539
Joyce Kobori
CA
Kaiser Foundation Hospital - Hayward
27400 Hesperian Boulevard
Hayward
CA, 94545
Phone: 510-784-4463
Mark Lipson
CA
Kaiser Foundation Hospital - Redwood City
1150 Veterans Blvd
Redwood City
CA, 94063
Phone: 650-299-3567
CA
Kaiser Foundation Hospital - San Diego
4647 Zion Avenue
Room 2426
San Diego
CA, 92120
Rebecca Mardach-Verdon
CA
Kaiser Foundation Hospital - Stockton
KFHP 868-776 Main MOB2
7373 West Lane
Stockton
CA, 95210
Phone: 209-476-5258
CA
Kaiser Health Plan - San Francisco
2238 Geary Blvd
San Francisco
CA, 94115
Phone: 415-833-2865
Mark Lipson
CA
Kaiser Health Plan - San Rafael
99 Montecillo Road
San Rafael
CA, 94903
Phone: 415-444-4337
Mark Lipson
CA
Kaiser Hospital - Sacramento
1650 Response Road
Sacramento
CA, 95815
Phone: 916-614-4785
Fax: 916-614-4985
Mark Lipson
CA
Kaiser Medical Center - Woodland Hills
5601 De Soto Ave
Woodland Hills
CA, 91367
Phone: 818-719-3530
Rebecca Mardach-Verdon
CA
Kaiser Medical Group Southern California - LA
Regional Metabolic Services
4700 Sunset Blvd, 1st Floor
Los Angeles
CA, 90027
CA
Kaiser Oncology Pharmacy - Oakland
3701 Broadway 3rd Floor
Oakland
CA, 94611
Mark Lipson
CA
Kaiser Permanente - Fontana
9961 Sierra Avenue
Fontana
CA, 92335
Rebecca Mardach-Verdon
CA
Kaiser Permanente - Roseville
1600 Eureka Road
Roseville
CA, 95661
Mark Lipson
CA
Kaiser Permanente Oakland Medical Center Genetics
280 W. MacArthur Blvd.
Oakland
CA, 94611
Phone: 510-752-6298
John Baker, MD
CA
Kaiser Permanente of Southern California - Panorama City
13652 Cantara Street
Panorama City
CA, 91402
Phone: 818-375-2073
Fax: 818-375-4259
Rebecca Mardach-Verdon
CA
La Jolla Village Family Medical Group
4520 Executive Drive
#105
San Dieego
CA, 92121
Phone: 858-450-5900
Daniel Michaels, MD
CA
Marin General Hospital
250 Bon Air Road
Greenbrae
CA, 94904
Phone: 415-925-7922
Michael Chase
CA
Moores UCSD Cancer Center
3855 Health Science Drive
La Jolla
CA, 92037
Phone: 858-822-6098
Ted Ball
CA
Palo Alto Medical Foundation - Mountain View
701 E. El Camino Real
Mountain View
CA, 94040
Phone: 650-934-7600
James Heckmann
CA
Rady Childrens Hospital San Diego
3020 Childrens Way
San Diego
CA, 92123
Phone: 858-966-4941
Fax: 858-966-4956 (pa dept)
Bruce Barshop
CA
St. Joseph Outpatient Cancer Center
1000 W. La Veta Ave
Orange
CA, 92868
Phone: 714.734.6245
Fax: 714.734.6241
Kusum Ohri
CA
Sutter Davis Hospital
2020 Sutter Place
Suite 105
Davis
CA, 95616
Rebecca Darsey
CA
Tower Hematology / Oncology
9090 Wilshire Boulevard
Suite 200
Beverly Hills
CA, 90211
Phone: 310-205-5708
Fax: 310-285-7298
Barry Rosenbloom, MD, FACP
Cheryl Elzinga, BA
CA
Tower Hematology Oncology
Comprehensive Gaucher Treatment Center
9090 Wilshire Blvd. Suite 200
Beverly Hills
CA, 90211
Phone: 310-888-8680
Barry Rosenbloom
CA
UCLA Westwood Onc / Hem Clinic
100 UCLA Medical Plaza
Suite 550
Los Angeles
CA, 90095
Phone: 310-794-4955
Fax: 310-443-0477
Michael Rosove
CA
UCSD San Diego (Medical Center)
200 W.Arbor Drive
# 8825
San Diego
CA, 92103
Phone: 619-471-9585
Bruce Barshop, MD
Kimberly Victor, Clinical Coordinator
CA
UCSF - Lysosomal Disease Center
533 Parnassus Ave UC Hall Building- Room U585
PO Box 0748
San Francisco
CA, 94143
Phone: 415-476-9997
Fax: 415-476-9976
Seymour Packman, MD

CA
UCSF - Stanford Lysosomal Disease Center
300 Pasteur Drive, H-315
Stanford
CA, 94305
Phone: 650-723-6858
Fax: 650-498-4555
Gregory Enns
CA
UCSF Medical Ctr - Comprehensive Cancer Center - Mt Zion
1600 Divisadero Street, 5th Flr
San Francisco
CA, 94115
Phone: 415-353-7051 or 7155
Seymour Packman
CA
University of California San Francisco
533 Parmassus Avenue
PO Box 0748
San Francisco
CA, 94143-0748
Phone: 415-514-3656 or 415-476-9997
Fax: 415-476-9976
Seymour Packman, MD
Cindy Morgan, MS
Rachel
CA
USC (Women's & Children's Hospital)
1801 Marengo Street
General Labs Bld. RM 1G24
Los Angeles
CA, 90033
Phone: 323-226-3816
Soji Yano, MD
Dr Yano is also the genetic counselor
CA
USC School of Medicine Div. of Hematology
1441 Eastlake Avenue
MS 34
Los Angeles
CA, 90033
Phone: 323-865-3949
Howard A. Liebman, MD
Laura Berman, RN
CA
VA San Diego
3350 La Jolla Village Drive #111E
San Diego
CA, 92161
Phone: 858-642-3356
Fax: 858-552-7485
Grace Ku
CA
Wilshire Oncology Medical Group
1250 S Sunset #303
West Covina
CA, 91790
Phone: 626-856-5858
Cary Presant
CO
Kaiser Englewood Medical Center - Englewood
2955 S. Broadway
Englewood
CO, 80113
Matthew Taylor
CO
Kaiser Permanente - Aurora
16601 E Centertech Parkway
Aurora
CO, 80011
Phone: 303-326-6747
CO
Rocky Mountain Cancer Center
22 West Dry Creek Circle
Littleton
CO, 80165
Phone: 303-730-4700
Fax: 303-730-4700
Richard McMahon
CO
The Children's Hospital Metabolic Clinic
13121 East 17th Avenue
Box B153
Arora
CO, 80045
Phone: 303-724-2338
Fax: 720-777-7322
Daniel R. Ambruso, MD
Taru Hays, MD
Janet Thomas, MD
Janell Kierstein, CGC/Coord LSD clinic
CO
The Childrens Hospital
Division of Genetic Services
13123 E. 16th Avenue, P.O. Box 6508
Aurora
CO, 80045
Phone: 720-777-2948
CO
The Childrens Hospital
320 E Fontanero Street
Ste. 308 B520
Colorado Springs
CO, 80907
Phone: 719-228-6300
Fax: 719-228-6320
Bruce Cook
CO
The Childrens Hospital
13123 East 16th Avenue
Suite B115
Aurora
CO, 80045
Phone: 720-777-2948
Daniel Ambruso
CO
The Children\'s Hospital
13123 East 16th Avenue
Suite B115
Aurora
CO, 80045
Phone: 720-777-6511
Taru Hays
CO
Univ of CO/ Adult Medical Genetic Clinic
Mailstop B132, Lob535
12401 E. 17th Ave.
Aurora
CO, 80045
Phone: 720-848-6521 or 303-724-1113
Matthew Taylor, MD
Jean Jirikowic, genetic counselor
Cari Wells, genetic counselor
CO
University of Colorado Hospital
12401 E 17th Ave
Aurora
CO, 80045
Phone: 303-724-1400
Fax: 720-848-0469
Matthew Taylor
CT
Greenwich Hospital
5 Perryridge Rd
Greenwich
CT, 6830
Phone: 203.863.3733
Beverly Drucker
CT
Stamford Hospital-Bennett Cancer Center
190 West Broad St.
Stamford
CT, 6902
Phone: 203-276-7199
Michael Bar
CT
Yale New Haven Hospital - Transplant
800 Howard Ave
New Haven
CT, 6510
Phone: 203-688-4404
Pramod Mistry
CT
Yale University School of Medicine
333 Cedar Street
1080 LMP
New Haven
CT, 06520-8019
Phone: 203-785-3197
Fax: 203-785-3365
Pramod K Mistry, Ph.D. MD, FRCP
Ruhua Yang, BS
DC
Children's National Medical Center
111 Michigan Avenue NW
Washington
DC, 20010-2970
Phone: 202-476-3094
Fax: 202-476-5979
Kenneth N Rosenbaum, MD
Ann Carr
Cynthia J. Tifft, MD, PhD
Sandra Yang
Felicitas L. Lacbawan, MD
DC
Sibley Memorial Hospital
5255 Loughboro Rd. NW
Washington
DC, 20016
Phone: 202-537-4277
Linda Yau
FL
Children's Hospital at St. Joseph's Hospital
3001 West Dr. Martin Luther King Blvd.
Tampa
FL, 33607
Phone: 813-554-8976 or 813-554-8420
Fax: 813-554-8377
Terry DeClue, MD
FL
David Kahn, MD
2964 N State Road 7
Suite 330
Margate
FL, 33063
Phone: 954-984-9998
Fax: 954-984-9988
David Kahn, MD
FL
East Lake Oncology
4114 Woodlands Parkway
Suite 301
Palm Harbor
FL, 34685
Phone: 727-789-2595
Fax: 727-789-8891
Diana Norbergs
FL
Florida Cancer Specialist - Sarasota
1970 Golf Street
Sarasota
FL, 34236
Phone: 941-957-1000
Fax: 941-951-2117
Richard Brown
FL
Florida Cancer Specialists - Clearwater Office
303 Pinellas Street
Suite 230
Clearwater
FL, 33756
Phone: 727-442-4188
Shaukat Shaikh
FL
Florida Cancer Specialists - Clearwater Office
303 Pinellas Street
Suite 230
Clearwater
FL, 33756
Phone: 727-442-4188
Shaukat Shaikh
FL
Florida Cancer Specialists - Naples
681 4th Ave., N.
Naples
FL, 34102
Phone: (239) 434.2622
Fax: (239) 434.6876
Martin Nicolau
FL
Florida Cancer Specialists: Ft Myers
15681 New Hampshire Court
Fort Myers
FL, 33908
Phone: 239-437-4444
Fax: 239-437-5788
William Harwin
FL
Florida Hospital Cancer Institute
2501 N. Orange Avenue
Suite 286
Orlando
FL, 32804
Phone: 407.898.2343 or 407-834-5151
Fax: 407.898.1926
Raul Castillo, MD
Jan Perun, NP
FL
Gainesville Hematology Oncology Associates
1147 NW 64th Terr
Gainesville
FL, 32605
Phone: 352-332-3900
Fax: 352-331-3802
Andres Bhatia
FL
Hematology & Oncology Consultants, PA
2501 N. Orange Ave.
Suite 381
Orlando
FL, 32804
Phone: 407-898-5452
Fax: 407-898-1085
Lee Zehngebot
FL
Miami Children\'s Hospital
3200 SW 60th Court
Suite 205
Miami
FL, 33155-4000
Phone: 305-663-8595 or 305-662-8237
Fax: 305-669-6443
Mislen S Bauer, MD
FL
Nemours Children's Clinic (Jacksonville)
807 Children's Way
Jacksonville
FL, 32207
Phone: 904-390-3586
Fax: 904-390-3720
Pam Arn, MD
Debra Eunpu, genetic counselor
Kimberly Guthrie, genetic counselor
FL
Nemours Children's Clinic (Orlando)
1717 S. Orange Ave.
Suite 100
Orlando
FL, 32806
Phone: (407) 650-7245
Fax: (407) 650-7133
Paul Gordon, MD
Stacey Rosenthal, genetic counselor
FL
Northwest Oncology and Hematology
8170 Royal Palm Boulevard
The University Research Foundation for Lysosomal Storage Disorders
Coral Springs
FL, 33065
Phone: 954.755.1904
Neal Weinreb
FL
Palm Beach Cancer Institute
1395 State Road 7
Suite 310
Wellington
FL, 33414
Phone: 561-366-4111
Daniel Spitz
FL
St. Josephs Childrens Hospital
3001 W. Dr. Martin Luther King Boulevard
Tampa
FL, 33607
Phone: 813-554-8500
Terry DeClue
FL
Tallahassee Memorial Cancer Center
1300 Miccosukee Road
Tallahassee
FL, 32308
Phone: 850-431-1712
Fax: 850-431-6518
Viral Bhanderi
FL
University of Florida
1600 SW Archer Road/Box 100277
Box 100277
Gainesville
FL, 32610-0296
Phone: 352-265-7525
Fax: 352-392-3051
Marc Zumberg, MD
FL
University of Miami
Mailman Center D820
PO Box 016820
Miami
FL, 33101
Phone: 305-243-6464 or 305-243-4464
Debbie Barbouth, MD
FL
University of South Florida Regional Genetics Program
One Davis Boulevard
Tampa
FL, 33606
Phone: 813-233-2727
Fax: 813-233-2734
Boris G Kousseff, MD
Sue Carbonell
FL
University Research Foundation for Lysosomal Storage Diseases Inc.
(URFLSD)
8170 Royal Palm Boulevard
Coral Springs
FL, 33065
Phone: 954 755-1904
Neal J Weinreb, MD
GA
Emory University School of Medicine
Department of Human Genetics
2165 N. Decatur Rd.
Decatur
GA, 30033
Phone: 404-778-8565
Contact: Suma Shankar, MD
GA
Georgia Cancer Specialists - Alpharetta
3330 Preston Ridge
Suite 110
Alpharetta
GA, 30005
Phone: 678-566-6995
Fax: 678-566-0346
Carlos Franco
GA
Georgia Cancer Specialists - Atlanta
1100 Johnson Ferry Rd.
Atlanta
GA, 30342
Phone: 404-256-4777
Fax: 404-256-5515
Carlos Franco
GA
Harbin Clinic Clinical Research Department
311 Redmond Road
Rome
GA, 30165
Phone: 888-427-2461
Fax: 706-378-3011
Todd Kelley
GA
MCG Children's Medical Center
1120 15th Street, BG-1071
Augusta
GA, 30912-3720
Phone: 706-721-2809
Fax: 706-721-9463
David Flannery, MD
HI
Queens Medical Center
1301 Punchbowl St
Honolulu
HI, 96813
Phone: 808-547-4570
Fax: 808-537-7854
Laurie Seaver
IA
Blank Childrens Hospital
1200 Pleasant Street
Des Moines
IA, 50309
Phone: 515-241-5437
Fax: 515-241-8911
Stephen Elliott
IA
Buena Vista Regional Medical Center
1525 W. 5th Street
Storm Lake
IA, 50588
Phone: 712-213-8672
Fax: 712-213-8013
David Crippin
IA
Cedar Valley Cancer Center
3530 W 4th Street
Waterloo
IA, 50701
Phone: 319-233-2701
Fax: 319-236-7993
Boriana Kamenova
IA
St. Lukes Hospital
1026 A Avenue NE
Cedar Rapids
IA, 52402
Phone: 319-369-8024
Mark Reinertson
IA
UI Hospitals & Clinics/Dept. Pediatrics-Div. Hematology/Oncology
200 Hawkins Drive
2523 JCP
Iowa City
IA, 52242-1083
Phone: 319-356-2007
Fax: 319-356-7659
Raymond Tannous, MD
Myrl Holiday, PA-C
IA
University of Iowa Hospitals and Clinics
200 Hawkins Drive
Iowa City
IA, 52242
Phone: 888-573-5437
Fax: 319-356-3347
Raymond Tannous
ID
St. Josephs Regional Cancer Center
415 6th Avenue
Lewiston
ID, 83501
Phone: 208.743.7427
Fax: 208.743.7421
IL
Cancer Care Specialists - Decatur
210 W. McKinley Ave
Decatur
IL, 62526
Phone: 217-876-6600
Fax: 217-876-6606
Mario Velasco
IL
Children's Memorial Hospital
2300 Children's Plaza
Box 59
Chicago
IL, 60614
Phone: 773-880-4462 or 773-880-3358
Fax: 773-929-9565
Joel Charrow, MD
Shanna Widera, RN, APN
Barbara Burton, MD,
Maria Helgson, MS
IL
Childrens Memorial Hospital
2300 Childrens Plaza
Chicago
IL, 60614
Phone: 773-880-3058
Joel Charrow
IL
Hematology-Oncology Associates of Illinois
9711 Skokie Blvd.
Suite A
Skokie
IL, 60076
Phone: 847-568-9930
Fax: 847-568-9932
Ira Oliff, MD
Jennifer Lober, NP
IL
North Shore Hematology Oncology - Highland Park
767 Park Ave West #120
Highland Park
IL, 60035
Phone: 847-432-0300
Fax: 847-432-1203
Ira Oliff
IL
North Shore Hematology Oncology Skokie
9711 Skokie Blvd.
Suite A
Skokie
IL, 60077
Phone: 847-568-9930
Fax: 847-568-9932
Ira Oliff
IL
Orchard Healthcare Research Inc.
9711 Skokie Boulevard
Skokie
IL, 60076
Phone: 847-568-9930
Ira Oliff, MD

Contact:
Joy Jardinico, MSN/ED, BSN, RN


IL
University of Chicago
5841 S. Maryland Avenue
Chicago
IL, 60637
Phone: 773-834-0555
Fax: 773-834-0556
Darrel Waggoner, MD
IN
Clarian Arnett Cancer Center
420 N 26th Street
Lafayette
IN, 47904
Phone: 765-448-8000
Mahammad Khan
Thomas Jones
IN
Pediatric Gastroenterology Associates of Indiana
8402 Harcourt Rd.
Suite 402
Indianapolis
IN, 46260
Phone: 317-338-9450
Fax: 317-338-9567
Susan Maisel
KS
Olathe Medical Center
20333 151st Street
Olathe
KS, 66061
Phone: 913-791-4200
Fax: 913-791-4389
Michael Greenfield
KS
University of Kansas Medical Center
3901 Rainbow Blvd
Kansas City
KS, 66160
Phone: 913-945-6176 or 913-588-6326
Majed D. Dasouki, MD


KY
Blue Grass Hematology Oncology
701 Bob-O-Link Dr.
St. Joseph Health System
Lexington
KY, 40504
Phone: 859-224-3194
Fax: 859-223-4399
Scott Pierce
KY
Norton Healthcare Pavilion - Infusion Center
315 East Broadway
4th Floor
Louisville
KY, 40202
Phone: 502-629-2500 (main#)
Fax: 502-629-2055
They only do infusions at this location
Andrea Louis, genetic counselor
KY
University of Kentucky
Clinical and Biochemical Genetics
740 S Limestone, J-415
Lexington
KY, 40536
John Geil
KY
University of Louisville School of Medicine
Department of Pediatric Hematology/Oncology
601 South Floyd Street, Suite 500
Louisville
KY, 40402
Phone: 502-629-7750
Fax: 502-629-8752
Salvatore J. Bertolone, MD
LA
Lafayette General Medical Center
1214 Coolidge Blvd.
Lafayette
LA, 70503
Phone: 337- 289-7991
Paulette Blanchet
LA
Tulane University Health Sciences Center
Hayward Genetics Program
1430 Tulane Ave, SL-31
New Orleans
LA, 70112
Hans Andersson
LA
Tulane University Medical Center
1430 Tulane Ave.
Mailbox SL31
New Orleans
LA, 70112
Phone: 504-588-5101 or 504-988-9836
Fax: 504-988-1763
Hans C, Andersson, MD
Chris Dvorak, genetic counselor
MA
Baystate Medical Center - Genetic Services
759 Chestnut Street
Springfield
MA, 01107
Phone: 413-794-8891
Fax: 413-794-8166
Mary Alice Abbott, MD
Matthew Fickie, MD
Jolie Matheson, MS, CGC
MA
Brigham and Women\\\'s Hospital
75 Francis Street
Adults Genetic Clinic
Boston
MA, 02115
Phone: 617-525-8111
Dr. Michael Murray
Monica Giovani, genetic counselor
MA
Cape Cod Hospital
27 Park St.
Hyannis
MA, 2601
Phone: 508-771-1800
David Lovett
MA
Children's Hospital Boston
300 Longwood Avenue
Karp#8210
Boston
MA, 02115
Phone: 617-919-2139
Fax: 617-730-0934
Ellis J. Neufeld, MD, Ph.D.
Gail Martell, CNP
MA
Childrens Hospital of Boston
Division of Genetics and Metabolic Medicine
300 Longwood Ave
Boston
MA, 2115
Phone: 617-919-2670
Ellis Neufeld
MA
Harvard Vanguard Medical Associates - Kenmore
Dept Hematology/Oncology
133 Brookline Ave
Boston
MA, 2215
Phone: 617-421-8774
Fax: 617-421-6008
Joan Goldberg
MA
Massachusetts General Hospital
100 Blossom Street
Boston
MA, 2114
Phone: 617-726-8743
Fax: 617-724-3166
David Kuter
MA
Massachusetts General Hospital
55 Fruit St
YAW 6B
Boston
MA, 2114
Phone: 617-726-5732
Fax: 617-724-9620
Katherine Sims
MA
Massachusetts General Hospital
Yawkey Center for Outpatient Care, 8B
32 Fruit St
Boston
MA, 2114
Phone: 617-724-6193
Fax: 617-724-1137
Marsha Browning
MA
Massachusetts General Hospital - Hematology / Oncology Unit
Yawkey Building, COX640
55 Fruit Street - Yawkey7E
Boston
MA, 02114
Phone: 617-724-6193
Fax: 617-724-1137
David J. Kuter, MD
Lorrie Hudson, RN
MA
Massachusetts General Hospital - Molecular Neurogenetics
185 Cambridge Street
Simches Research Center, Room 555
Boston
MA, 02114
Phone: 617-726-5718
Fax: 617-724-9620
Katherine B. Sims, MD, Director
Virginia Clarke, RN
MA
MGH Neuro-Infusion
165 Cambridge Street
Boston
MA, 2114
Phone: 617-643-2066
Fax: 617-726-2958
Marsha Browning
MA
Mount Auburn Hospital
330 Mount Auburn Street
Cambridge
MA, 2138
Phone: 617-499-5166
Fax: 617-499-5222
Matthew Kaufman
MA
Nemours Baystate Medical Center
Hematology/Oncology Dept.
3350 Main Street
Springfield
MA, 01107
Phone: 413-794-9338
Fax: 413-794-3613
Richard Steingart, MD
MA
Parker Hill Oncology & Hematology, PC / Waltham Cancer Center
210 Bear Hill Road
Suite 300
Waltham
MA, 2451
Phone: 781-788-8544
Fax: 781-209-5507
Zachary Spigelman
MA
Tufts Medical Center
750 Washington Street
Boston
MA, 2111
Phone: 617-636-4522
Fax: 617-636-0745
Mark Korson
MA
Tufts New England Medical Center
800 Washington Street
3rd floor
Boston
MA, 02111
Phone: (617) 636-5454
Fax: 617-636-0745
Mark Korson, MD
(does not see new GD patients)
Reena Jepva, MD
(sees new GD patients)
Laurie Demmer, MD and GSC
MA
UMass Memorial Medical Center
Department of Pediatrics; University Campus
55 Lake Avenue North
Worcester
MA, 1655
Phone: 508-856-3949
Fax: 508-334-3525
Edward Ginns
MA
University of Massachusetts Medical Center
303 Belmont Street
Molecular Diagnostics Laboratory
Worcester
MA, 01604
Phone: 508-856-8134
Fax: 508-856-2433
Edward I. Ginns, MD, PhD, Director
Deborah Faryna, Center Coordinator
MD
Anne Arundel Medical Center
2001 Medical Parkway
Outpatient Infusion Center/Clatinoff
Annapolis
MD, 21041
Phone: 443-481-5794
Fax: 443-481-5744
Stuart Selonick
MD
Greater Baltimore Medical Center
6701 N Charles St
Baltimore
MD, 21204
Phone: 4438492000
Fax: 4438492000
Gary Cohen
MD
Holy Cross Hospital
1500 Forest Glen Rd.
Silver Spring
MD, 20910
Phone: 301-754-7000
Peter Sherer
MD
Johns Hopkins Hospital
David Rubenstein Child Health Building
600 North Wolf Street
Baltimore
MD, 21287
Phone: 410-955-3071
Fax: 410-614-9246
Ada Hamosh, MD, Ph.D.
Amanda Berner, MS
Dana Goins, Clinic Coordinator
MD
Kaiser Permanente - Baltimore
7141 Security Blvd
Baltimore
MD, 21244
Mian Khalid
MD
Kaiser Permanente - Kensington
10810 Connecticut Avenue
Kensington
MD, 20895
Phone: 301-929-7389
Eirene Koroulakis
MD
Maryland Oncology Hematology
10710 Charter Dr.
Suite G020
Columbia
MD, 21044
Phone: 410-964-2212
Fax: 410-964-0380
Clement Knight
MD
National Institutes of Health
10 Center Drive - MS1260
Building 10, Room 3D04
Bethesda
MD, 20892-1260
Phone: 301-496-0370
Fax: 301-402-6438
Roscoe Brady, MD
AND
Ellen Sidransky, MD
35 Convent Drive, Room 1E-623
Bethesda, MD 20892-3708
MD
Sinai Hospital of Baltimore
2401 West Belvedere Avenue
Baltimore
MD, 21215
Phone: 410-601-4710
Fax: 410-601-6266
Cristina Truica
MD
University of Maryland - Pediatrics Genetics
737 W. Lombard Street, 1st Floor
Baltimore
MD, 21201
Phone: 410-328-3335
Carole Green, MD
Mimi Blitzer, MD
Allison Mitchell, CGC
ME
Eastern Maine Medical Center
489 State St
Bangor
ME, 4401
Phone: (207) 973-7000
Wendy Smith
ME
Maine Center for Cancer Medicine
100 Campus Drive
Suite # 108
Scarborough
ME, 4074
Elizabeth Connelly
ME
Maine Medical Center
887 Congress Street, Suite 320
Portland
ME, 04102-3103
Phone: 207-662-5791
Fax: 207-662-5528
Wendy Smith, MD
Valerie Banks, M.E.d.
ME
Pen Bay Medical Center
6 Glenn Cover Drive
Rockport
ME, 4856
Phone: 207-596-8000
Fax: 207-596-5323
Kirsten Staples
MI
Ann Arbor Hematology/Oncology
5301 Huron River Dr.
Ypsilanti
MI, 48197
Phone: 734-712-5137
Fax: 734-712-1012
Andrew Eisenberg
MI
Childrens Hospital of Michigan
3901 Beaubien Street
Detroit
MI, 48201
Phone: 313-745-5437
David Stockton
MI
DNS Hematology / Oncology PC
28455 Haggerty Road
Suite 203
Novi
MI, 48377
Phone: 248-324-4444
Fax: 248-324-2444
Leopoldo Eisenberg, MD
MI
Henry Ford Hospital
2799 W. Grand Blvd
Detroit
MI, 48202
Phone: 313-916-2600
Bernd Barthel
MI
Henry Ford Medical Center - Fairlane
19401 Hubbard Dr
Dearborn
MI, 48126
Phone: 800-436-7936
Bernd Barthel
MI
St. Joseph Mercy Hospital
5301 McAuley Drive
Ypsilanti
MI, 48197
Phone: 734-712-3456
Pamela Shore
MI
University of Michigan
1500 E. Medical Center Drive, 3520
5214 CCGCB/Box 0940, 1500 E. Medical Center Drive
Ann Arbor
MI, 48109
Scott Gitlin
MN
Children's Hospitals and Clinics of Minnesota (St. Paul)
2525 Chicago Ave
Mailstop 32-T6
Minneapolis
MN, 55404
Phone: 612-813-7240
Nancy Mendelsohn, MD
Rebecca Olson, NP
MN
Childrens Hospitals and Clinics of MN - Minneapolis
Dept Medical Genetics
2525 Chicago Ave S, MS32-T6
Minneapolis
MN, 55404
Phone: 651-220-6884
Fax: 612-813-6360
Nancy Mendelsohn
MN
Fairview University Medical Center
420 Delaware Street, SE
Box 446
Minneapolis
MN, 55455
Phone: 612-625-7422
Fax: 612-624-2682
Chester B. Whitley, Ph.D., MD
MN
Mayo Clinic
200 1st Street SW
Rochester
MN, 55905
Phone: 507-284-4333
Fax: 507-284-0727
Marc Patterson, MD
MN
Minnesota Oncology/Hematology, P.A.
6545 France Ave
Suite 210
Edina
MN, 55435
Phone: 952-928-2900
Fax: 952-928-2944
Steven Rousey
MN
Park Nicollet Clinic - St. Louis Park
3800 Park Nicollet Blvd.
St. Louis Park,
MN, 55416
Phone: 952-993-3123
John Paul Carlson
MN
University of Minnesota
Dept of Pediatrics & Institute of Human Genetics
420 Delaware Street SE
Minneapolis
MN, 55455
Phone: 612-625-7422
Chester B. Whitley, MD, PhD
MN
University of Minnesota / Fairview University Medical Center
Department of Human Genetics
420 Delaware SE, Box 446
Minneapolis
MN, 55455
Chester Whitley
MO
Cardinal Glennon Childrens Hospital
1465 South Grand Blvd
Saint Louis
MO, 63104
Phone: 314-577-5600
Gary Gottesman
MO
Childrens Mercy Hospital
2401 Gillham Road
Medical Genetics
Kansas City
MO, 64108
Phone: 816-234-3290
Fax: 816-346-1378
Laurie Smith
MO
University Hematology Oncology
4921 Parkview Place
Suite 14C
St Louis
MO, 63110
Phone: 314-290-7501
Fax: 314-290-7550
Shabbir Shafdar
MO
Washington University School of Medicine
660 South Euclid Avenue
Box 8116
St. Louis
MO, 63110
Phone: 314-454-6093
Alison J. Whelan, MD
Linda Manwaring, Geneticist
MO
Washington University School of Medicine
St. Louis Childrens Hospital, HospitalDivision of Genetics and Genomic Medicine
One Childrens Place
Saint Louis
MO, 63110
Phone: 314-454-6093
Fax: 314-454-2075
Dorothy Grange
MT
Kalispell Regional Medical Center
310 Sunnyview Lane
Kalispell
MT, 59901
Phone: 406-752-5111
William Boehme
NC
Carolina Medical Center Infusion Center
1601 Abbey Place
Charlotte
NC, 28086
Phone: 704-512-5378
Fax: 704-512-5354
Susan Sparks
NC
Carolinas Medical Center - Pediatric Clinical Genetics
PO Box 32861
1000 Blythe Blvd.
Charlotte
NC, 28232
Phone: 704-381-6800
Ann Salvino, MS, CGC
NC
Duke University Medical Center
Division of Medical Genetics
595 LaSalle Street
Durham
NC, 27710
Phone: 919-681-1945
Priya Kishnani, MD
NC
DUMC
Box 103856
Durham
NC, 27710
Phone: 919-684-2036
Fax: 919-684-8944
Priya Kishnani, MD
NC
Mission Outpatient Infusion Clinic
2 Medical Park
Suite 101
Asheville
NC, 28803
Phone: 828-213-1111 (Mission Hosp Main #)
Ellen Boyd
NC
Presbyterian Hospital
301 Hawthorne Lane
Charlotte
NC, 28204
Phone: 704-384-1900
Paulette Bryant
NC
University of North Carolina - Genetics & Metabolism
Department of Pediatrics
CB#7487
Chapel Hill
NC, 27599-7487
Joe Muenzer, MD
Amy Fisher, MS, CGC
NC
Veterans Administration Hospital
1100 Tunnel Road
Asheville
NC, 28805
Phone: 828-298-7911
Fax: 828-299-5872
Richard Lindt
NC
Wake Forest Univ. Baptist Medical Center
Medical Center Blvd.
Winston-Salem
NC, 27157
Phone: 336-713-5435
Fax: 336-713-5436
Mary Ann Knovich
NE
Childrens Specialty Physicians
111 N. 84th Street
Omaha
NE, 68114
Phone: 402-955-4199
Richard E. Lutz, MD

Contact: Kristi DeHaai
NE
University of Nebraska
Munroe-Meyer Inst. for Genetics & Rehab. Med.
985430 Nebraska Medical Center
Omaha
NE, 68198
Phone: 402-559-6800
Fax: 402-559-6688
William Rizzo
NE
University of Nebraska - Medical Center
985456 Nebraska Medical Center
Omaha
NE, 68198-5456
Phone: 402-559-2550
William Rizzo, MD
NH
Dartmouth Hitchcock Medical Center
Clinical Genetics
One Medical Center Drive
Lebanon
NH, 3756
Phone: 603-653-6044
James Filiano
NH
Dartmouth Mary Hitchcock Medical Center
One Medical Center Drive
Lebanon
NH, 03756-0001
Phone: 603-650-5000
Fax: 603-650-8268
James J Filiano, MD, PhD
Lynn Wolf, NP
NJ
Adult Medical Oncology Hematology
39 Sycamore Ave
Little Silver
NJ, 7739
Phone: 732-576-8610
Fax: 732-576-8823
Susan Greenberg
NJ
Hackensack University Medical Center
30 Prospect Avenue
Hackensack
NJ, 07601
Phone: 201-996-5262
Fax: 201-996-5176
Robert Wallerstein, M.D.
Robin Wolf, genetic counselor
NJ
Kimball Medical Center
600 River Ave
Lakewood
NJ, 8701
Kenneth Nahum
NJ
Nuerogenetics & Lysosomal Storage Disorders
St. Josephs Regional Medical Center
703 Main Street
Patterson
NJ, 07503
Phone: 973-754-2433
Swati Sathe, MD, MS

Other Office Locations:
1135 Broad Street, Clifton, NJ 07013
57 Willowbrook Boulevard, Wayne, NJ 07470
11 Getty Avenue, Patterson, NJ 07503
NJ
St. Josephs Hospital
Genetics Associates of NJ
350 Engle Street
Englewood
NJ, 7631
Phone: 201-227-5526
Jennifer Ibrahim
NJ
St. Joseph\'s Regional Medical Center
Center for Lysosomal Storage Diseases
1135 Broad Street
Clifton
NJ, 07013
Phone: 973-754-2433
Punita Gupta, MD
Swati Sathe, MD
NJ
St. Peter's University Hospital / Institute for Genetics
254 Easton Avenue
M.O.B. Room 2190
New Brunswick
NJ, 08901-0591
Phone: 732-745-6659
Fax: 732-249-2687
Debra Lynn Day-Salvatore. MD
NJ
St. Peters University Hospital
254 Easton Avenue, MOB 4410
Institute for Genetics
New Brunswick
NJ, 8901
Phone: 732-745-6659
Debra Day-Salvatore
NJ
The Center for Cancer and Hematologic Disease
1930 East Route 70, Suite V107
Cherry Hill
NJ, 8003
Debra Day-Salvatore
NJ
University Medical Center at Princeton
253 Witherspoon St
Princeton
NJ, 8540
Phone: 609.497.4000
Benjamin Gitterman
NM
New Mexico Cancer Care Alliance
490A West Zia Road
Santa Fe
NM, 87505
Phone: 505-955-7900
Fax: 505-955-7914
Leanna Scott-Timperley
NM
University of New Mexico / Health Sciences Center - Dept. of Pediatrics - Div. of Hematology / Oncology
MSC10 5590
1 University of New Mexico
Albuquerque
NM, 87131
Phone: 505-272-2345 (Clinic)
Prasad Matthew, MD
NM
University of New Mexico Cancer Center
1201 Camino de Salud NE
Albuquerque
NM, 87131
Phone: 505-272-4946
Fax: 505-925-0100
Edward Libby
NV
Comprehensive Cancer Center of Nevada
3730 Southeastern Avenue
Las Vegas
NV, 89169
Phone: 702-952-3400
Heather Allen, MD
NV
Comprehensive Cancer Center of Nevada
3730 S. Eastern Ave
Las Vegas
NV, 89169
Phone: 702-952-3400
Fax: 702-952-3448
Heather Allen
NY
Albany Medical Center
47 New Scotland Avenue
MC 52
Albany
NY, 12208
Phone: 518-262-5995
Fax: 518-262-6805
Harry Dunn, MD
NY
Anna Gattani, MD
1050 Park Avenue
New York
NY, 10028
Phone: 212-828-4000
Fax: 212-828-2323
Anna Gattani
NY
Fitzpatrick Cancer Specialists (CVPH Medical Center)
75 Beekman Street
Plattsburgh
NY, 12901-1438
Phone: 518-562-7100
Jan Duus
NY
Hematology Oncology Associates of Brooklyn
1660 East 14 St.
Suite 501
Brooklyn
NY, 11229
Phone: 718-382-8500
Fax: 7180382-4648
Mikhail Grinberg
NY
Hematology-Oncology of Long Island
3003 New Hyde Park Rd.
Suite 401
New Hyde Park
NY, 11042
Phone: 516-354-5700
Fax: 516-488-8048
Joseph Rameck
NY
Hemophilia Center of Western New York
936 Delaware Ave.
Buffalo
NY, 14209
Phone: 716-896-2470
Fax: 716-898-5537
Tam Tran, PA
NY
Maimonides Medical Center
6300 8th Avenue
Brooklyn
NY, 11220
Phone: 718-765-2600
Fax: 718-765-2630
Philip Rubin, MD (Adults)
and
Ludovico Guarini, MD (Pediatric)
(718)-283-6652
NY
Mount Sinai Medical Center
Dept of Human Genetics
Fifth Avenue at 100th Street, Box 1498
New York
NY, 10029
Manisha Balwani
NY
North Shore Hematology / Oncology
1201 Northern Blvd.
Manhasset
NY, 11030
Phone: 516-627-1221
Fax: 516-627-6857
Richard Forte
NY
North Shore Long Island Jewish Health System
1554 Northern Blvd.
Suite 204
Manhasset
NY, 11030
Phone: 516-365-3996
Dilip Patel
NY
Northshore - Long Island Jewish Health System - Division of Genetics
1554 Northern Blvd,
Suite 204
Manhasset
NY, 11030
Phone: 516-365-4597 Ext. 2811
Fax: 516-365-4597
Martin Bialer, MD
Donna Bernstein, MS
NY
NYU Medical Center
403 East 34th Street
2nd Floor
New York
NY, 10016
Phone: 212-263-8344
Fax: 212-263-8310
Greg Pastores
NY
SUNY Upstate
Childrens Hospital of Central NY Dept of Pediatrics, Div of Geneti
750 E. Adams Street
Syracuse
NY, 13210
Phone: 315-464-7610
Fax: 315-464-6329
Joan Pellegrino
NY
SUNY Upstate-Regional Oncology Center
Regional Oncology Center
1000 East Genesee Street, Suite 403
Syracuse
NY, 13210
Phone: 315-464-2933
Fax: 315-464-2928
Joan Pellegrino
NY
University Hospital (SUNY)
Regional Oncology Center
750 East Adams Street
Syracuse
NY, 13210
Phone: 315-464-8218
Fax: 315-464-8206
Rich Williams, Clinical Nurse Management
NY
Vassar Brothers Medical Center
45 Reade Place
Poughkeepsie
NY, 12601
Phone: 845.483.6329
Fax: 845.483.6407
Michael Maresca
NY
West Chester Medical Center
503 Grasslands Road
Suite 200
Valhalla, NY
NY, 10595
Phone: 914-304-5313 (infusions)
David F Kronn, MD
Donna Lim-Melian, MD
Valerie Marrero-Stein, RN
Appt Coord. (New Patients) x 5310
(LSD Regional Program is a Division of Regional Medical Genetics)
NY
Womenís and Childrenís Hospital of Buffalo
219 Bryant St
Buffalo
NY, 14222
Phone: 716-878-7530 (genetics Dept.)
OH
Case Western Reserve University
11100 Euclid Avenue
Lakeside Room 1500
Cleveland
OH, 44106
Phone: 216-844-3936
Fax: 216-844-7497
Arthur B. Zinn, MD, PhD
OH
Childrenís Hospital
700 Childrenís Drive
Columbus
OH, 43205
Phone: (614) 722-2000 or 722-3535 (genetics)
Joan Atkin, genetic counselor

OH
Cincinnati Childrens Hospital
3333 Burnet Ave, MLC 7016
Division of Human Genetics
Cincinnati
OH, 45229
Phone: 800-647-4805
Greg Grabowski
OH
Cleveland Clinic Foundation
Pediatric Hematology/Oncology
9500 Euclid Ave., S20
Cleveland
OH, 44195
Phone: 216-444-5517
Fax: 216-444-3577
Michael G. Levine, MD
OH
Cleveland Clinic-Beachwood Center
26900 Cedar Road
Beachwood
OH, 44122
Phone: 216-839-2990
Alan Lichtin
OH
Columbus Oncology Associates
810 Jasonway Ave.
Columbus
OH, 43214
Phone: 614-442-3130
Fax: 614-442-3145
Scott C. Blair, MD
OH
Metro Health Medical Center
Dept. of Genetics
2500 Metro Health Dr.
Cleveland
OH, 44109
Phone: 216-778-5198 or 778-4323
Fax: 216-778-8840
Carol Crowe, MD
OH
Southern Ohio Medical Center
1805 27th Street
Portsmouth
OH, 45662
Phone: 740-354-5891
Elie Saab
OH
University Hospital Ireland Cancer Center
11100 Euclid Ave
Cleveland
OH, 44106
Phone: 216-896-1750
Richard Stein
OK
Children's Hospital of Oklahoma - Dept of Genetics
940 NE 13th
Room 2B 2418
Oklahoma City
OK, 73104
Phone: 405-271-8685
Fax: 405-271-8697
Susan Palmer, MD
OK
Saint Francis Hospital
6161 South Yale Avenue
Tulsa
OK, 74136
Phone: 918-494-2595
Fax: 918-494-2547
Michael Kayser
OK
University of Oklahoma Health Science Center
1200 N Phillips
Suite 12100
Oklahoma City
OK, 73104
Phone: 405-271-8685
Fax: 405-271-8697
Susan Palmer
OR
Oregon Health & Science University
Medical Group
707 SW Gaines St.
Portland
OR, 97239
Phone: 503-494-7859
Robert Steiner, MD
Contact: Susan Lattimore

OR
Oregon Health Sciences University
Metabolic Clinic
707 S.W. Gaines Road
Portland
OR, 97239
Phone: 503-494-7859
Fax: 503-494-2786
Robert Steiner, MD
Cary Harding, MD
David Koeller, MD
Markus Grompe, MD
Nurse Practitioner: Becky Whittemore, RN, NP
Contact: Abigail Hata, MS CGC
Genetic Counselor
PA
Andrews and Patel Associates
4518 Union Deposit Road
Harrisburg
PA, 17111
Phone: 717-526-1030
Fax: 717-526-1032
Mary Simmonds
PA
Childrens Hospital of Philadelphia
Department of Metabolic Diseases
South 34th Street and Civic Center Boulevard
Philadelphia
PA, 19104
Phone: 215-590-3376
Fax: 215-590-4297
Paige Kaplan MBBCh
Attending Physician, Section of Metabolic Diseases
Professor Emerita,
Perelman School of Medicine at the University of Pennsylvania.
PA
Childrens Hospital of Pittsburgh
One Childrens Hosp Drive
4401 Penn Ave, Faculty Pavillion Suite 1200
Pittsburgh
PA, 15224
Phone: 412-692-3475
Fax: 412-692-7073
David Finegold
PA
Children\'s Hospital of Philadelphia
Section of Metabolic Diseases
34th Street and Civic Center Boulevard
Philadelphia
PA, 19104
Phone: 215-590-3376
Fax: 215-590-4297
Paige Kaplan MBBCh
Attending Physician, Section of Metabolic Diseases
Professor Emerita,
Perelman School of Medicine at the University of Pennsylvania.
PA
Children\'s Hospital of Pittsburgh - Dept. of Medical Genetics
One Children\'s Hospital Drive
4401 Penn Avenue
Pittsburgh
PA, 15224
Phone: 412-692-3475
Fax: 412-692-7073
David N. Finegold, MD
Katie Long, Genetic Counselor (katie.long@chp.edu)
Michele Graham, RH (412-692-3476)
PA
Hershey Medical Center
Dept of Pediatrics & Pathology
500 University Drive, PO Box 850
Hershey
PA, 17033
Phone: 717-531-8521
Han-Mou Tsai
PA
Jeanes Hospital
7600 Central Ave
Philadelphia
PA, 19111
Phone: 215.728.2230 (infusion ctr)
John Woodward
PA
Pennsylvania Oncology / Hematology Associates
230 West Washington Square
Second Floor
Philadelphia
PA, 19106
Phone: 215-829-6088
Fax: 215-829-6104
David Minter, MD
PA
Univ. of Pennsylvania Health System Medical Genetics Dept.
34th & Civic Center Boulevard
1 South 300
Philadelphia
PA, 19104
Phone: 800-789-7366
Fax: 215-662-3232
Reed Pyeritz, MD,
Chief of Medical Genetics
Barbara Bernhardt, MS, CGC
RI
Miriam Hospital
164 Summit Avenue
Providence
RI, 2906
Phone: 401-793-2920
Fax: 401-793-7603
Anthony Mega
RI
Miriam Hospital - FAIN Building
164 Summit Ave.
3rd Floor
Providence
RI, 02906
Phone: 401-793-2920
Fax: 401-793-7603
Anthony Mega, MD
RI
Rhode Island Hospital
593 Eddy Street
Providence
RI, 02903
Phone: 401-444-5171
Fax: 501-444-8845
Geoffrey Allen, MD
Donna Burke, Office Manager
SC
Cancer Centers of the Carolinas
3 Butternut Dr. # B
Greenville
SC, 29605
Phone: 864-241-7272
Fax: 864-241-7273
Jay Walls
SC
Greenwood Genetics
S13 Edgewood Drive
Greenville
SC, 29605
Phone: 864-250-7944
Fax: 864-250-9582
Dr. Curtis Rogers
Brooke Smith, MS
SC
MUSC - Medical Genetics Program
135 Rutledge Avenue
#395
Charleston
SC, 29425
Phone: 843-876-1516
Fax: 843-876-1518
G. Shashidhar Pai, MD
TN
Baptist Medical Center
2021 Church Street
Suite 608
Nashville
TN, 37203
Phone: 615-340-4460
Fax: 615-340-4481
Ellen W Roback, MD
TN
Hematology-Oncology of Knoxville
1114 Weisgarber Rd.
Suite A
Knoxville
TN, 37909
Phone: 865-558-8839
Fax: 865-588-3781
Bruce Avery
TN
Johnson City Medical Center
400 North State Of Franklin Rd.
Johnson City
TN, 37604
Phone: 423-431-3950
Fax: 423-431-3969
Kathryn Klopfenstein
TN
Le Bonheur Childrens Hospital
50 N. Dunlap
Memphis
TN, 38103
Phone: 901-287-6438
Fax: 901-287-6453
Jewell Ward
TN
St. Francis Hospital - Memphis
5959 Park Avenue
Memphis
TN, 38119
Phone: 901-448-6595
Fax: 901-448-4117
Jewell C. Ward, MD, PhD
(This center for adults)
TN
TC Thompson Children's Hospital
910 Blackford St.
Chattanooga
TN, 37403
Phone: 423-778-6112
Fax: 423-778-7033
Cathy Stevens, MD
Jill Pouncey, MS
TN
Texas Medical Infusion
6518 LBJ Freeway
Dallas
TN, 75240
Phone: 214-503-1250
Fax: 214-503-6914
N. Christopher Lawrence
TN
University of Tennessee - Memphis
711 Jefferson Avenue
Suite 523
Memphis
TN, 38163
Phone: 901-448-6595
Fax: 901-448-4117
Jewel C Ward, MD, PhD
Phyllis Coupwood, Genetics Nurse
TN
University of Tennessee Medical Center
1930 Aloca Hwy
Medical Building A Suite 435
Knoxville
TN, 37902-6999
Phone: 865-544-9030
Fax: 865-305-6675
Carmen Lozzio, MD
TN
Vanderbilt University
Department of Medical Genetics
DD2205 Medical Center North
Nashville
TN, 37232
Phone: 615-322-7601
Fax: 615-343-9951
Thomas Morgan
TN
Vanderbilt University Medical Center
DD-2205 Medical Center North
1161 21st Ave. South
Nashville
TN, 37232-2578
Phone: 615-322-7601
Fax: 615-343-9951
Thomas Morgan, MD
John A. Phillips, III, MD
Brendan Lanpher, MD
Rizwan Hamid, MD
Melinda Cohen, MS
Vicki Hannig, MS
Jean Pffotenhauer, Genetic Counselor
Misti Williams, Genetic Counselor
TX
Baylor College of Medicine
Dept. of Molecular & Human Genetics
One Baylor Plaza, MS NAB 2015
Houston
TX, 77030
Phone: 832-822-4261
Christine Eng, MD
Reid Sutton, MD
TX
Baylor Colllege of Medicine Texas Childrens Hospital
Department of Molecular and Human Genetics
One Baylor Plaza
Houston
TX, 77030
Phone: 713-798-6584
Christine Eng
TX
Baylor Research Institute at Dallas
Institute of Metabolic Disease
3812 Elm Street
Dallas
TX, 75246
Phone: 214-820-4533 or 214-820-4752
Fax: 214-820-4853
Dr. Raphael Schiffmann
TX
Cook Children's Genetics
1300 W. Lancaster
Suite 204
Fort Worth
TX, 76012
Phone: 682-885-2170
Alice Basinger, MD, PhD
TX
Cook Childrens Medical Center
801 7th Avenue
Ft. Worth
TX, 76104
Donald Beam
W. Paul Bowman
TX
Covenant Childrens Hospital
4102 24th Street
Suite 201
Lubbock
TX, 79410
Phone: 806-725-4840
Fax: 806-725-4847
Latha Prasannan
TX
Medical City Dallas Hospital
7777 Forest Ln Bldg A
1st Floor Pharmacy
Dallas
TX, 75230
Phone: Contact Angela: 972-566-7246
Joel Weintha
TX
Providence Memorial Hospital (Pediatric Cancer Center)
2001 North Oregon Street
EL Paso
TX, 79902
Phone: 915-541-8903
Rueben Matalon
TX
Scott & White Clinic & Hospital - Adult Hemotology/Oncology Group
2401 South 31st Street
Temple
TX, 76508
Phone: 254-724-2708
Arthur E. Frankel, MD
TX
Specialty for Children's Genetics
1301 Barbara Jordan Boulevard
Suite 200
Austin
TX, 78723
Phone: 512-628-1840
Fax: 512-628-1841
James Gibson, MD
TX
Texas Oncolocy
301 N Washington
Odessa
TX, 79701
Phone: 432-335-8275
Fax: 432-332
Joel Weinthal
TX
Texas Oncology
2790 Lake Vista Dr
Lewisville
TX, 75063
Phone: 972-459-1300
Fax: 972-459-1384
Derrick Nguyen
TX
Texas Oncology
7777 Forest Lane Suite D400
Dallas
TX, 75230
Phone: 972-566-6647
Fax: 972-566-6496
Jay Courtright
TX
Texas Oncology
925 Gessner St
Suite 550
Houston
TX, 77024
Philip L. Cimo
TX
University of Texas Southwestern - Children's Medical Center
1935 Motor Street
Dallas
TX, 75235
Phone: 214-456-2357
Fax: 214-456-2567
Lewis Waber, MD
Gail Brookshire, MS, CGC
TX
University of Texas Southwestern Medical Center
1935 Motor Street
MC9063
Dallas
TX, 75235
Yu-Min Shen
TX
University of Texas Southwestern Medical Center at Dallas
2201 Inwood Road
Dallas
TX, 75235
Phone: 214-648-1939
Cynthia Rutherford, MD
Yu-Min Chen, MD
Eugene P. Frenkel, MD
TX
University of Texas Southwestern Medical Center Dallas Childrens Hospitals
Division of Medical Genetics
5323 Harry Hines Blvd.
Dallas
TX, 75390
Lewis Waber
UT
Dixie Regional Medical Center
544 S. 400 E
St. George
UT, 84770
Phone: 435-688-4900
Derrick Haslem
UT
University of Utah Medical Center
100 Mario Capecchi Drive
Salt Lake City
UT, 84113
Phone: 801-581-8943
Nicola Longo, MD, PhD
UT
University of Utah Medical Center / Primary Children's Medical Center
Division of Pediatric Medical Genetics
50 N. Medical Drive
Salt Lake City
UT, 84132
Phone: 801-585-2457 or 801-587-3605
Fax: 801-587-7690
Nicola Longo, MD
David Ziskochil, MD
Carrie bailey, BS
VA
Blue Ridge Cancer Care
2955 Market St.
Suite 5
Christiansburg
VA, 24073
Phone: 540-381-5291
Fax: 540-381-7857
Harry McCoy
VA
Center for Clinical Trials
Springfield
VA, 22152
Phone: 703-569-1133
Ozlem Golker-Alpan, MD
VA
Children's Hospital of Kings Daughters
601 Children's Lane
Norfolk
VA, 23507-1921
Phone: 757-668-9723
Fax: 757-668-9724
Virginia Proud, MD
VA
LSD Research and Treatment Unit
CFCT, O&O Alpan LLC
11212 Waples Mill Road, Suite 100
Fairfax
VA, 22030
Phone: 571-303-1900 X 1904
Fax: 571-308-1919
Ozlem Goker-Alpan, MD
Amanda Herbert, Genetic Counselor
Chidma Martin, Study Coordinator
VA
Prince William Hospital
8700 Sudley Rd.
Manassas
VA, 20110
Phone: 703-369-8000
John Cary
VA
University of Virginia-Health System
P.O. BOX 800386
Dept. of Pediatric Genetics Division
Charlottesville
VA, 22908-0386
Phone: 434-924-2665
Fax: 434-924-1797
William G. Wilson, MD
Casey McKenna, MS
VA
Virginia Baptist Hospital
3300 Rivermont Avenue
Lynchburg
VA, 24503
Phone: 434-200-4000
William Wilson
VA
Virginia Commonwealth University
401 North 11th Street
Box 980033
Richmond
VA, 23005
Phone: 804-828-4643
Fax: 804-828-3760 or 804-628-0070
James Shaw
WA
Children's Hospital-Biomedical Genetic Clinic
4800 Sand Point Way NE
Mailstop B-6594
Seattle
WA, 98105
Phone: 206-987-1952
Fax: 206-987-5329
Michael Raff, MD
Susan Hale, MN, ARNP
WA
University of Washington
Department of Pediatrics
Seattle
WA, 98195
Phone: 206-543-3370
C. Ronald Scott, MD
WA
University of Washington Hospital
1959 NE Pacific Street
Room HSB RR-310
Seattle
WA, 98195
Phone: 206-616-7192
Fax: 206-685-1286
C Ronald Scott
WI
Children\'s Hospital of Wisconsin
9000 West Wisconsin Avenue
PO Box 1997
Milwaukee
WI, 53201-1997
Phone: or 414-266-2979 or 414-266-6722
Fax: 414-266-1616
William Rhead, MD
WI
University Hospital & Clinics
University Station
2880 University Ave
Madison
WI, 53705
Phone: 608-263-7500
Fax: 608-263-5969
Norman Jensen
WV
West Virginia University
One Medical Center Drive
Morgantown
WV, 26506
Phone: 304-293-2551
Fax: 304-293-7373
Dr. Rebecca Schmidt, MD
WY
St. Johns Medical Center
625 East Broadway
Jackson
WY, 83001
Phone: 307-733-3636
Dennis Butcher