National Gaucher Foundation - Gaucher Disease
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Past Gaucher Disease News

Apr 15, 2014 - Two approaches to treat Lysosomal Storage Diseases

Apr 15, 2014 - Goat to be cloned to treat rare genetic disorder

Apr 7, 2014 - Gaucher-Canada Boston Marathon Connection

Mar 31, 2014 - Patients with type 1 Gaucher disease in South Florida, USA: demographics, genotypes, disease severity and treatment outcomes

Mar 25, 2014 - Pfizer® Consolidates Patient Assistance Program into One Program Called Pfizer RxPathways™ on April 1, 2014

Mar 18, 2014 - Genzyme Presents Safety Overview For Cerdelga™

Mar 14, 2014 - Shire Pharmaceuticals Initiates Voluntary Nationwide Recall Of One batch, Packaged into Three Lots of VPRIV®

Mar 12, 2014 - Urgent laws for genotype tests needed

Mar 4, 2014 - CIRM’s YouTube stem cell channel tops half a million views

Feb 25, 2014 - Statement Relating To Shire’s Vpriv® (Velaglucerase Alfa For Injection) Press Release Dated June 28, 2012

Feb 14, 2014 - FDA Approves Shire's Manufacturing Facility For Vpriv Drug

Feb 13, 2014 - Protalix BioTherapeutics Announces Oral GCD Data to be Presented at WORLD Symposium 2014

Feb 6, 2014 - Why FDA Supports a Flexible Approach to Drug Development

Jan 23, 2014 - Protalix Announces Successful Manufacturing Facility Evaluation by Health Canada - taliglucerase alfa for Gaucher

Jan 23, 2014 - New hope for Gaucher patients

Jan 10, 2014 - EU panel recommends suspension of risky bone disease drug

Jan 09, 2014 - Lawyers assures HC of helping rickshawpuller's son's treatment

Jan 07, 2014 - POSITION STATEMENT NATIONAL GAUCHER FOUNDATION MEDICAL ADVISORY BOARD

Jan 07, 2014 - A Rare-Disease Champion For Gaucher Disease

Dec 18, 2013 - PCORI comments from NGF CEO, Rhonda P. Buyers

Dec 18, 2013 - Genetic Alliance team among PCORI funding recipients to establish the National Patient Centered Clinical Research Network

Dec 18, 2013 - Genzyme and NORD Establish Program to Help Undiagnosed Patients with Rare Diseases

Dec 17, 2013 - Overworked Cellular Machines May Explain Gaucher Disease Link to Parkinson's Disease

Dec 12, 2013 - FDA Grants Priority Review for Genzyme’s Cerdelga™ (eliglustat), an Investigational Oral Therapy for Gaucher Disease

Dec 8, 2013 - Pfizer Brings New Programs and Resources to the Gaucher Community!

Dec 8, 2013 - Pfizer Brings Together Jewish Community Leaders To Raise Broad Awareness of Gaucher Disease

Dec 6, 2013 - Research and Markets: Global Gaucher's Disease Pipeline Highlights - 2014

Nov 18, 2013 - FightSMA Announces Passage of National Pediatric Research Network Act

Oct 14, 2013 - Protalix BioTherapeutics Announces Positive Phase I Clinical Trial Results for Oral GCD in Gaucher Disease Patients

Oct 2, 2013 - Leanne Mullen Gaucher Story The Hammonton Gazette

Sep 29, 2013 - Global Genes | RARE Project

Sep 5, 2013 - NORD Publishes New Online Physician's Guide to Gaucher Disease

Jul 1, 2013 - Genzyme Convenes 1st International Gaucher Conference on Bone Disease

Jun 5, 2013 - Pfizer Reaches Out to Russian Jewish Community to Educate About Gaucher Disease, the Most Common Jewish Genetic Disorder

Apr 29, 2013 - UPLYSO(TM) (alfataliglicerase) Approved in Mexico and Chile for the Treatment of Gaucher Disease

Apr 2, 2013 - Protalix BioTherapeutics Treats First Gaucher Patient in Phase I Study With PRX-112, an Orally-Administered Enzyme Treatment of Gaucher Disease

Mar 22, 2013 - A Scholarship Program for the LSD Community

Mar 18, 2013 - UPLYSO™ (alfataliglicerase) Approved in Brazil by ANVISA for the Treatment of Gaucher Disease

Mar 7, 2013 - Protalix BioTherapeutics Receives Approval to Initiate Phase I Study in Gaucher patients with PRX-112, an Orally-Administered Candidate for the Treatment of Gaucher Disease

Feb 15, 2013 - Genzyme Announces Positive New Data from Two Phase 3 Studies for Oral Eliglustat Tartrate for Gaucher Disease

Jan 25, 2013 - The Shire OnePath® Co-pay Assistance Program