National Gaucher Foundation - Gaucher Disease
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National Gaucher Foundation's Gaucher Disease Events Calendar

  • National Gaucher Foundation's Events Calendar

    • Feb 23-27, 2015 - Rare Disease Week on Capitol Hill

    • Feb 25, 2015 - Pfizer Patient Support Meeting - Kansas City, MO

    • Feb 28, 2015 - Rare Disease Day

      Gaucher Awareness MonthJoin the NGF in its support of
      "RARE DISEASE DAY"
      February 28, 2015


      February 28, 2015 marks the eighth international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from more than 80 countries and regions worldwide are planning awareness-raising activities around the slogan; Day-by-day, hand-in-hand.

      Please view the official 2015 Rare Disease Day video at
      https://www.youtube.com/watch?v=zQIeiQ7S6tQ&feature=youtu.be. Let's make this important video go viral by Rare Disease Day, February 28, 2015. It is an outstanding body of work and a great tribute to those with rare diseases.


      The main objective of Rare Disease Day is to raise awareness among he general public and decision-makers about rare diseases and their impact on patients' lives. The campaign targets primarily the general public and also seeks to raise awareness among policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.

      For more information about Rare Disease Day, events and how you can participate go to
      http://www.rarediseaseday.org/article/about-rare-disease-day.


      Raise and join hands for rare disease day
    • Mar 8, 2015 - NGF Educational Meeting - Boca Raton, FL

      Please Join The National Gaucher Foundation, Inc. and the University Research Foundation for Lysosomal Storage Diseases for Lunch and an Educational Meeting about Gaucher Disease

      Hosted and Moderated by:

      Dr. Neal Weinreb
      Regional Coordinator of the International Collaborative Gaucher Group
      Director of University Gaucher Disease - Fabry Disease Treatment Center
      University Research Foundation for Lysosomal Storage Diseases Hospital
      "Gaucher Disease: The Latest and Best from the 2015 WORLD Lysosomal Diseases Network meeting"

      Guest Speaker:

      Dr. Joel Charrow
      Professor of Pediatrics, Feinberg School of Medicine, Northwestern University Head, Division of Genetics, Birth Defects and Metabolism, Ann and Robert H. Lurie Children's Hospital of Chicago
      "Newborn Screening and Genomic Analyses"

      When
      Sunday, March 8, 2015
      11:30 a.m. - 3:30 p.m.

      Where
      Maggiano’s Little Italy - Boca Raton
      21090 St. Andrews Blvd.
      Boca Raton, FL 33433
      561-361-8244

      How can YOU best cope with Gaucher?
      Ask Questions • Meet Others • Gather Information • Stay in the Loop
      We are a welcoming community of patients, families, friends and medical professionals.

      RSVP to Cyndi Frank by Monday, March 2, 2015
      Cyndi@gaucherdisease.org or 877.649.2742

      Meeting supported by Genzyme, a Sanofi Company.
    • Mar 26, 2015 - Pfizer Patient Support Meeting - Tampa, FL

    • Mar 29, 2015 - NGF Educational Meeting - Los Angeles, CA

      Please Join The National Gaucher Foundation, Inc. and Cedars Sinai Tower Hematology Oncology Medical Group for Lunch and an Educational Meeting about Gaucher Disease

      Featuring Guest Speaker:

      Ozlem Goker-Alpan, MD
      Director, Lysosomal Disorders Unit
      O&O Alpan LLC
      "Immune dysfunction in Gaucher disease, from autoimmunity to cancer."

      When
      Sunday, March 29, 2015
      11:30 a.m. - 3:30 p.m.

      Where
      Maggiano’s Little Italy at The Grove
      189 The Grove Drive
      Los Angeles, CA 90036
      323-965-9665

      How can YOU best cope with Gaucher?
      Ask Questions • Meet Others • Gather Information • Stay in the Loop
      We are a welcoming community of patients, families, friends and medical professionals.

      RSVP to Cyndi Frank by Monday, March 23, 2015
      Cyndi@gaucherdisease.org or 877.649.2742

      Meeting supported by educational grants from Genzyme, A Sanofi Company, and Pfizer.
    • Jun 27 - 30, 2015 - Conference on Children's Bone Health - Salzburg, Austria

      7TH INTERNATIONAL CONFERENCE ON CHILDREN'S BONE HEALTH

      The aim of this Conference is to bring together scientists and clinicians from a wide range of disciplines and from across the globe to gain a better understanding of the growing skeleton in health and disease. The scope ranges from basic molecular mechanisms to clinical aspects, from bone physiopathology to treatment. Attendees will have an interest in rare and inherited bone disorders, general aspects of bone metabolism and bone mass in children, adolescents and young adults.

      More information about this event...

      EVENT DETAILS

      WHEN
      Jun 27, 2015 01:00 PM to
      Jun 30, 2015 01:00 PM

      WHERE
      Salzburg, Austria

      CONTACT NAME
      Janet Crompton

      CONTACT PHONE
      441453549929
    • Oct 18 - 19, 2015 - Gaucher Disease Conference - Bethesda, MD

      SAVE THE DATE!
      National Gaucher Foundation, Inc.
      Gaucher disease Conference
      October 18 & 19, 2015
      Doubletree by Hilton
      Bethesda, MD
      Room Reservations: To receive the NGF's group rate for your room reservations, click here.
    NGF Sponsored Patient Meeting
    Non-NGF Sponsored Patient Meeting
    Event