National Gaucher Foundation - Gaucher Disease
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National Gaucher Foundation's Gaucher Disease Events Calendar

  • National Gaucher Foundation's Events Calendar

    • Nov 2, 2014 - NGF Educational Meeting - McLean, VA

      Please Join The National Gaucher Foundation, Inc. And The Lysosomal Disorders Unit, O&O Alpan, LLC For Lunch And An Educational Meeting About Gaucher Disease.

      Special Guest Speakers:

      Ozlem Goker-Alpan, MD
      Director, Lysosomal Disoders Unit
      O&O Alpan LLC
      "New concepts for therapeutic management of Gaucher disease"

      Susan Waterbury, FNP
      Advanced Certified Hospice and Palliative Care Nurse (ACHPN)
      The Infusion Center, O&O ALPAN LLC
      "Practical aspects of pain management"

      When
      Sunday, November 2, 2014
      11:30 a.m. - 3:30 p.m.

      Where
      Maggiano’s Little Italy Tyson’s Corner
      2001 International Drive
      McLean, VA 22102
      (703) 356-9000

      How can YOU best cope with Gaucher?
      Ask Questions • Meet Others • Gather Information • Stay in the Loop
      The NGF is a welcoming community of patients, families, friends and medical professionals.

      2014 Celebrates the NGF’s 30th Anniversary of Services and Support to the Gaucher Community!
      www.gaucherdisease.org

      RSVP to Cyndi Frank by Monday, October 27, 2014
      Cyndi@gaucherdisease.org or 877.649.2742

      Meeting supported by educational grants from Genzyme, a Sanofi Company; Pfizer and Shire Human Genetic Therapies, Inc.
    • Nov 2, 2014 - Genzyme - "All About Cerdelga" - Mill Valley, CA

    • Nov 3, 2014 - Dr. Lau's Gaucher Roundtable - New York, NY

      November 3rd - 6:00 pm - 7:30pm

      Location: Ambulatory Care Center
      240 East 38th Street, 20th floor
      New York NY, 10016

      Heather A. Lau, MD
      Assistant Professor, Child Neurology
      Director, Lysosomal Storage Disorders Program
      Division of Neurogenetics
      Department of Neurology
      NYU Langone Medical Center

      Topic: "One size does not fit all" Discussion and Question/Answer regarding tailoring treatment to the Individual's needs to attain/maintain the goals of Gaucher Disease therapy.

      To RSVP or for more information, please contact Mary Lin at (212) 263-6628.

      There is no affiliation or sponsorship by any pharmaceutical company. This is an NYU sponsored program.
    • Nov 4, 2014 - Shire Ambassador Program - Tulsa, OK

    • Nov 9, 2014 - NGF Educational Meeting - San Mateo, CA

      Gaucher Disease: What is Certain, What is Uncertain

      Special Guest Speakers:

      Seymour Packman, MD
      Professor Emeritus, Pediatrics; Director, Biochemical Genetics Service
      Director, Lysosomal Disease Center; Director, Neurometabolic Program and Clinics
      University of California San Francisco
      "Gaucher Disease: Problems, Solutions, and Problems"

      Wendy Packman, JD, PhD
      Professor of Psychology, and Director, JD-PhD Program in Psychology and the Law, Palo Alto
      University; Adjunct Professor, Pediatrics, University of California San Francisco
      "Psychosocial Aspects of Living with Gaucher Disease"

      When
      Sunday, November 9, 2014
      11:30 a.m. - 3:30 p.m.

      Where
      Kingfish Restaurant
      201 South B Street
      San Mateo, CA 94401
      (650) 343-1226

      How can YOU best cope with Gaucher?
      Ask Questions • Meet Others • Gather Information • Stay in the Loop
      The NGF is a welcoming community of patients, families, friends and medical professionals.

      2014 Celebrates the NGF’s 30th Anniversary of Services and Support to the Gaucher Community!
      www.gaucherdisease.org

      RSVP to Cyndi Frank by Monday, November 3, 2014
      Cyndi@gaucherdisease.org or 877.649.2742

      Meeting supported by educational grants from Genzyme, a Sanofi Company; Pfizer and Shire Human Genetic Therapies, Inc.
    • Nov 13, 2014 - Shire Ambassador Program - Houston, TX

    • Nov 16, 2014 - NGF Educational Meeting - Del Mar, CA

      Please Join The National Gaucher Foundation, Inc. And UCSD- Rady Children's Hospital, San Diego For Lunch And An Educational Meeting About Gaucher Disease.

      Special Guest Speakers:

      Bruce Barshop, MD, PhD
      Professor of Clinical Pediatrics
      Benard L. Maas Chair in Inherited Metabolic Disease
      Genetics Division, Biochemical Genetics Program
      UCSD- Rady Children's Hospital, San Diego
      "Gaucher Research and Therapy Updates"

      Ruth E. Coffman, MN, ARNP
      World Parkinson Congress Ambassador & Gaucher Disease Advocate
      Parkinson & Gaucher Disease Patient
      "Gaucher Disease & Parkinson Disease: Understanding the Evidence, Becoming Empowered, & Remaining Hopeful"

      When
      Sunday, November 16, 2014
      11:30 a.m. - 3:30 p.m.

      Where
      Mia Francesca Restaurant - Del Mar Highlands
      12955 El Camino Real
      Del Mar, CA 92130
      858-519-5060

      How can YOU best cope with Gaucher?
      Ask Questions • Meet Others • Gather Information • Stay in the Loop
      The NGF is a welcoming community of patients, families, friends and medical professionals.

      2014 Celebrates the NGF’s 30th Anniversary of Services and Support to the Gaucher Community!
      www.gaucherdisease.org

      RSVP to Cyndi Frank by Monday, November 10, 2014
      Cyndi@gaucherdisease.org or 877.649.2742

      Meeting supported by educational grants from Genzyme, a Sanofi Company; Pfizer and Shire Human Genetic Therapies, Inc.
    • Dec 1, 2014 - Dr. Lau's Gaucher Roundtable - New York, NY

      December 1st - 6:00 pm - 7:30pm

      Location: Ambulatory Care Center
      240 East 38th Street, 20th floor
      New York NY, 10016

      Heather A. Lau, MD
      Assistant Professor, Child Neurology
      Director, Lysosomal Storage Disorders Program
      Division of Neurogenetics
      Department of Neurology
      NYU Langone Medical Center

      Topic: TBA

      To RSVP or for more information, please contact Mary Lin at (212) 263-6628.

      There is no affiliation or sponsorship by any pharmaceutical company. This is an NYU sponsored program.
    • Jan 5, 2015 - Dr. Lau's Gaucher Roundtable - New York, NY

      January 5th - 6:00 pm - 7:30pm

      Location: Ambulatory Care Center
      240 East 38th Street, 20th floor
      New York NY, 10016

      Heather A. Lau, MD
      Assistant Professor, Child Neurology
      Director, Lysosomal Storage Disorders Program
      Division of Neurogenetics
      Department of Neurology
      NYU Langone Medical Center

      Topic: TBA

      To RSVP or for more information, please contact Mary Lin at (212) 263-6628.

      There is no affiliation or sponsorship by any pharmaceutical company. This is an NYU sponsored program.
    • Jun 27 - Jun 30, 2015 - Conference on Children's Bone Health - Salzburg, Austria

      7TH INTERNATIONAL CONFERENCE ON CHILDREN'S BONE HEALTH

      The aim of this Conference is to bring together scientists and clinicians from a wide range of disciplines and from across the globe to gain a better understanding of the growing skeleton in health and disease. The scope ranges from basic molecular mechanisms to clinical aspects, from bone physiopathology to treatment. Attendees will have an interest in rare and inherited bone disorders, general aspects of bone metabolism and bone mass in children, adolescents and young adults.

      More information about this event...

      EVENT DETAILS

      WHEN
      Jun 27, 2015 01:00 PM to
      Jun 30, 2015 01:00 PM

      WHERE
      Salzburg, Austria

      CONTACT NAME
      Janet Crompton

      CONTACT PHONE
      441453549929
    NGF Sponsored Patient Meeting
    Non-NGF Sponsored Patient Meeting
    Event