National Gaucher Foundation - Gaucher Disease
Slideshow Image 1
Slideshow Image 2
Slideshow Image 3

National Gaucher Foundation's Gaucher Disease Events Calendar

  • National Gaucher Foundation's Events Calendar

    • Sep 21, 2014 - NGF Educational Meeting - Atlanta, GA

      Please Join The National Gaucher Foundation, Inc. And Emory Healthcare Lysosomal Storage Disease Department For Lunch And An Educational Meeting About Gaucher Disease.

      Gaucher Disease and Common Disorders: Studies Regarding Parkinson Disease and Multiple Myeloma

      Ellen Sidransky, MD
      Medical Genetics Branch, National Human Genome Research Institute
      National Institutes of Health
      "Gaucher Disease and Parkinsonism: An Evolving Story"

      William Wilcox, MD, PhD
      Lysosomal Storage Disease Center, Department of Human Genetics, Emory University
      "Multiple Myeloma in Gaucher Disease"

      Ruth E. Coffman, MN, ARNP
      World Parkinson Congress Ambassador & Gaucher Disease Advocate
      Parkinson & Gaucher Disease Patient
      "Gaucher Disease & Parkinson Disease: Understanding the Evidence, Becoming Empowered, & Remaining Hopeful"

      When
      Sunday, September 21, 2014
      11:30 a.m. - 3:30 p.m.

      Where
      Maggiano’s Little Italy Buckhead
      3368 Peachtree Road
      Atlanta, GA 30326
      404-816-9650

      How can YOU best cope with Gaucher?
      Ask Questions • Meet Others • Gather Information • Stay in the Loop
      The NGF is a welcoming community of patients, families, friends and medical professionals.

      2014 Celebrates the NGF’s 30th Anniversary of Services and Support to the Gaucher Community!
      www.gaucherdisease.org

      RSVP to Cyndi Frank by Monday, September 15, 2014
      Cyndi@gaucherdisease.org or 877.649.2742

      Meeting supported by educational grants from Genzyme, a Sanofi Company; Pfizer and Shire Human Genetic Therapies, Inc.
    • Sep 21, 2014 - Lunch Presentation - "All About Cerdelga" - Berkeley, CA

    • Sep 28, 2014 - NGF Educational Meeting - Seattle, WA

      Please Join The National Gaucher Foundation, Inc. And Emory Healthcare Lysosomal Storage Disease Department For Lunch And An Educational Meeting About Gaucher Disease.

      Comprehensive Treatment for Gaucher: Going Beyond ERT and SRT

      Pamela Becker, MD
      Professor, Medicine/Hematology
      University of Washington School of Medicine
      "Current & Future Therapies for Gaucher Disease"

      Suzanne Krupskas, PT
      Physical Therapist, Gaucher Advocate and Patient
      "Staying Healthy w/ Gaucher Disease Through Diet & Exercise"

      When
      Sunday, September 28, 2014
      11:00 a.m. - 2:30 p.m.

      Where
      Northwest Horticultural Society Hall (NHS Hall), Section C
      Center for Urban Horticulture
      3501 NE 41st Street
      Seattle, WA 98105

      A guided walking tour of the gardens and wetlands will follow the meeting at 2:30 p.m.
      Please sign up when you R.S.V.P. for the meeting


      How can YOU best cope with Gaucher?
      Ask Questions • Meet Others • Gather Information • Stay in the Loop
      The NGF is a welcoming community of patients, families, friends and medical professionals.

      2014 Celebrates the NGF’s 30th Anniversary of Services and Support to the Gaucher Community!
      www.gaucherdisease.org

      RSVP to Cyndi Frank by Monday, September 22, 2014
      Cyndi@gaucherdisease.org or 877.649.2742

      Meeting supported by educational grants from Genzyme, a Sanofi Company; Pfizer and Shire Human Genetic Therapies, Inc.
    • Oct 1, 2014 - Shire Ambassador Program - Dallas, TX

    • Oct 6, 2014 - Dr. Lau's Gaucher Roundtable - New York, NY

    • Oct 8, 2014 - Genetic, Rare and Immune Disorders Symposium - Fairfax, VA

      GENETIC, RARE AND IMMUNE DISORDERS SYMPOSIUM (GRIDS)

      Hosted by ORAL ALPAN & OZLEM GOKER-ALPAN of the Lysosomal and Rare Disorders Research and Treatment Center

      Wednesday, October 8: 2pm-9pm
      Thursday, October 9: 8am-1pm

      The Fair Oaks Marriott
      Fairfax, VA

      For more information and registration: https://ldrtcevents.squarespace.com/
    • Oct 9, 2014 - Genetic, Rare and Immune Disorders Symposium - Fairfax, VA

      GENETIC, RARE AND IMMUNE DISORDERS SYMPOSIUM (GRIDS)

      Hosted by ORAL ALPAN & OZLEM GOKER-ALPAN of the Lysosomal and Rare Disorders Research and Treatment Center

      Wednesday, October 8: 2pm-9pm
      Thursday, October 9: 8am-1pm

      The Fair Oaks Marriott
      Fairfax, VA

      For more information and registration: https://ldrtcevents.squarespace.com/
    • Oct 9, 2014 - Shire Ambassador Program - Phoenix, AZ

    • Oct 21, 2014 - Genetic Testing in Children and Adolescents - San Diego, CA

      Advocates Luncheon:
      Genetic Testing in Children and Adolescents

      Tuesday, October 21st from 12:30-2 pm ET
      San Diego Convention Center (SDCC), San Diego, California

      Presentation by Jeff Botkin, Professor of Pediatrics at the University of Utah, Adjunct Professor of Human Genetics, Chief of the Division of Medical Ethics and Humanities in the Department of Internal Medicine.

      This year at the 2014 American Society of Human Genetics Annual Meeting, The American Society of Human Genetics and Genetic Alliance have partnered to arrange an exclusive session and networking event for advocates. Join us on Tuesday, October 21st from 12:30-2pm ET to hear about the evolution of genetic testing in children and adolescents, with a specific focus on whole genome sequencing and the release of incidental findings. Meet genetics professionals and share your expertise. Lunch will be provided.

      Patient advocates who are interested in attending should contact James O'Leary by September 17 at joleary@geneticalliance.org. There is no cost to attend this event and a complimentary one-day registration to the ASHG Annual Meeting will be provided.
    • Oct 23, 2014 - Shire Ambassador Program - San Antonio, TX

    • Nov 3, 2014 - Dr. Lau's Gaucher Roundtable - New York, NY

    • Nov 4, 2014 - Shire Ambassador Program - Tulsa, OK

    • Nov 13, 2014 - Shire Ambassador Program - Houston, TX

    • Dec 1, 2014 - Dr. Lau's Gaucher Roundtable - New York, NY

    • Jan 5, 2015 - Dr. Lau's Gaucher Roundtable - New York, NY

    NGF Sponsored Patient Meeting
    Non-NGF Sponsored Patient Meeting
    Event