National Gaucher Foundation - Gaucher Disease
Slideshow Image 1
Slideshow Image 2
Slideshow Image 3

National Gaucher Foundation's Gaucher Disease Events Calendar

  • National Gaucher Foundation's Events Calendar

    • Oct 26, 2014 - NGF Educational Meeting - New York, NY

      Please Join The National Gaucher Foundation, Inc. And The Yale Lysosomal Disease Center and Gaucher Disease Treatment Center For Lunch And An Educational Meeting About Gaucher Disease.

      Gaucher Disease: ERTs, SRTs, and Future Treatments

      Special Guest Speakers:

      Pramod Mistry, MBBS, PhD, F.R.C.P.
      Professor of Medicine and Pediatrics, Yale School of Medicine
      Director of Yale Lysosomal Disease Center and Gaucher Disease Treatment Center
      "The Future of Gaucher and New Research Breakthroughs"

      James Shayman, MD
      Professor of Internal Medicine and Pharmacology, University of Michigan
      "Discovering new medicines for Gaucher disease: A Forty Year Retrospective"

      When
      Sunday, October 26, 2014
      11:30 a.m. - 3:30 p.m.

      Where
      The Yale Club of New York City
      50 Vanderbilt Avenue at 44th Street
      New York, NY 10017
      (212) 716-2100

      How can YOU best cope with Gaucher?
      Ask Questions • Meet Others • Gather Information • Stay in the Loop
      The NGF is a welcoming community of patients, families, friends and medical professionals.

      2014 Celebrates the NGF’s 30th Anniversary of Services and Support to the Gaucher Community!
      www.gaucherdisease.org

      RSVP to Cyndi Frank by Monday, October 20, 2014
      Cyndi@gaucherdisease.org or 877.649.2742

      Meeting supported by educational grants from Genzyme, a Sanofi Company; Pfizer and Shire Human Genetic Therapies, Inc.
    • Nov 2, 2014 - NGF Educational Meeting - McLean, VA

      Please Join The National Gaucher Foundation, Inc. And The Lysosomal Disorders Unit, O&O Alpan, LLC For Lunch And An Educational Meeting About Gaucher Disease.

      Special Guest Speakers:

      Ozlem Goker-Alpan, MD
      Director, Lysosomal Disoders Unit
      O&O Alpan LLC
      "New concepts for therapeutic management of Gaucher disease"

      Susan Waterbury, FNP
      Advanced Certified Hospice and Palliative Care Nurse (ACHPN)
      The Infusion Center, O&O ALPAN LLC
      "Practical aspects of pain management"

      When
      Sunday, November 2, 2014
      11:30 a.m. - 3:30 p.m.

      Where
      Maggiano’s Little Italy Tyson’s Corner
      2001 International Drive
      McLean, VA 22102
      (703) 356-9000

      How can YOU best cope with Gaucher?
      Ask Questions • Meet Others • Gather Information • Stay in the Loop
      The NGF is a welcoming community of patients, families, friends and medical professionals.

      2014 Celebrates the NGF’s 30th Anniversary of Services and Support to the Gaucher Community!
      www.gaucherdisease.org

      RSVP to Cyndi Frank by Monday, October 27, 2014
      Cyndi@gaucherdisease.org or 877.649.2742

      Meeting supported by educational grants from Genzyme, a Sanofi Company; Pfizer and Shire Human Genetic Therapies, Inc.
    • Nov 3, 2014 - Dr. Lau's Gaucher Roundtable - New York, NY

      More information coming soon.
    • Nov 4, 2014 - Shire Ambassador Program - Tulsa, OK

    • Nov 9, 2014 - NGF Educational Meeting - San Mateo, CA

      Gaucher Disease: What is Certain, What is Uncertain

      Special Guest Speakers:

      Seymour Packman, MD
      Professor Emeritus, Pediatrics; Director, Biochemical Genetics Service
      Director, Lysosomal Disease Center; Director, Neurometabolic Program and Clinics
      University of California San Francisco
      "Gaucher Disease: Problems, Solutions, and Problems"

      Wendy Packman, JD, PhD
      Professor of Psychology, and Director, JD-PhD Program in Psychology and the Law, Palo Alto
      University; Adjunct Professor, Pediatrics, University of California San Francisco
      "Psychosocial Aspects of Living with Gaucher Disease"

      When
      Sunday, November 9, 2014
      11:30 a.m. - 3:30 p.m.

      Where
      Kingfish Restaurant
      201 South B Street
      San Mateo, CA 94401
      (650) 343-1226

      How can YOU best cope with Gaucher?
      Ask Questions • Meet Others • Gather Information • Stay in the Loop
      The NGF is a welcoming community of patients, families, friends and medical professionals.

      2014 Celebrates the NGF’s 30th Anniversary of Services and Support to the Gaucher Community!
      www.gaucherdisease.org

      RSVP to Cyndi Frank by Monday, November 3, 2014
      Cyndi@gaucherdisease.org or 877.649.2742

      Meeting supported by educational grants from Genzyme, a Sanofi Company; Pfizer and Shire Human Genetic Therapies, Inc.
    • Nov 13, 2014 - Shire Ambassador Program - Houston, TX

    • Dec 1, 2014 - Dr. Lau's Gaucher Roundtable - New York, NY

      More information coming soon.
    • Jan 5, 2015 - Dr. Lau's Gaucher Roundtable - New York, NY

      More information coming soon.
    • Jun 27 - Jun 30, 2015 - Conference on Children's Bone Health - Salzburg, Austria

      7TH INTERNATIONAL CONFERENCE ON CHILDREN'S BONE HEALTH

      The aim of this Conference is to bring together scientists and clinicians from a wide range of disciplines and from across the globe to gain a better understanding of the growing skeleton in health and disease. The scope ranges from basic molecular mechanisms to clinical aspects, from bone physiopathology to treatment. Attendees will have an interest in rare and inherited bone disorders, general aspects of bone metabolism and bone mass in children, adolescents and young adults.

      More information about this event...

      EVENT DETAILS

      WHEN
      Jun 27, 2015 01:00 PM to
      Jun 30, 2015 01:00 PM

      WHERE
      Salzburg, Austria

      CONTACT NAME
      Janet Crompton

      CONTACT PHONE
      441453549929
    NGF Sponsored Patient Meeting
    Non-NGF Sponsored Patient Meeting
    Event