National Gaucher Foundation - Gaucher Disease
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National Gaucher Foundation's Gaucher Disease Events Calendar

  • National Gaucher Foundation's Events Calendar

    • Mar 26, 2015 - Pfizer Patient Support Meeting - Tampa, FL

    • Mar 29, 2015 - NGF Educational Meeting - Los Angeles, CA

      Please Join The National Gaucher Foundation, Inc. and Cedars Sinai Tower Hematology Oncology Medical Group for Lunch and an Educational Meeting about Gaucher Disease

      Featuring Guest Speaker:

      Ozlem Goker-Alpan, MD
      Director, Lysosomal Disorders Unit
      O&O Alpan LLC
      "Immune dysfunction in Gaucher disease, from autoimmunity to cancer."

      When
      Sunday, March 29, 2015
      11:30 a.m. - 3:30 p.m.

      Where
      Maggiano’s Little Italy at The Grove
      189 The Grove Drive
      Los Angeles, CA 90036
      323-965-9665

      How can YOU best cope with Gaucher?
      Ask Questions • Meet Others • Gather Information • Stay in the Loop
      We are a welcoming community of patients, families, friends and medical professionals.

      RSVP to Cyndi Frank by Monday, March 23, 2015
      Cyndi@gaucherdisease.org or 877.649.2742

      Meeting supported by educational grants from Genzyme, A Sanofi Company, and Pfizer.
    • Mar 31, 2015 - Shire Ambassador Meeting - San Francisco, CA

    • Apr 1, 2015 - How to Discuss Genetic Disease with Your Loved Ones

    • Apr 7, 2015 - Shire Ambassador Meeting - Springfield, MO

    • Apr 8, 2015 - Shire Ambassador Meeting - Asheville, NC

    • Apr 9, 2015 - Shire Ambassador Meeting - Charlotte, NC

    • Apr 12, 2015 - Genzyme, All about Cerdelga - Richmond, VA

    • Apr 13, 2015 - Shire Ambassador Meeting - Tulsa, OK

    • Apr 14, 2015 - Shire Ambassador Meeting - Oklahoma City, OK

    • Apr 15, 2015 - Shire Ambassador Meeting - Leawood, KS

    • Apr 19, 2015 - NGF Educational Meeting - Garden City, NY

      Please Join The National Gaucher Foundation, Inc. for Lunch and an Educational Meeting about Gaucher Disease

      Special Guest Speakers:

      Dr. Neal Weinreb
      Voluntary Associate Professor of Genetics and Medicine
      University of Miami Miller School of Medicine
      Chair, Scientific Board ICGG Gaucher Registry
      University Research Foundation for Lysosomal Storage Diseases, Boca Raton, Florida
      "Gaucher Disease: The Latest and Best from the 2015 WORLD Lysosomal Diseases Network meeting"

      Alissa B. Schwartz LCSWR, CHP
      Co-Owner, The Center for Soulful Living
      Soulfulife.com
      "Healing Depression and Anxiety Associated with Gaucher Disease through Understanding and Hope"

      When
      Sunday, April 19, 2015
      11:30 a.m. - 3:30 p.m.

      Where
      The Garden City Hotel
      45 Seventh Street
      Garden City, NY 11530
      516-877-9304

      How can YOU best cope with Gaucher?
      Ask Questions • Meet Others • Gather Information • Stay in the Loop
      We are a welcoming community of patients, families, friends and medical professionals.

      RSVP to Cyndi Frank by Monday, April 13, 2015
      Cyndi@gaucherdisease.org or 877.649.2742

      Meeting supported by Genzyme, a Sanofi Company, and Pfizer.
    • Apr 19, 2015 - Shire Ambassador Meeting - Charlottesville, VA

    • Apr 26, 2015 - NGF Educational Meeting - McLean, VA

      Please Join The National Gaucher Foundation, Inc. And The Lysosomal Disorders Unit, O&O Alpan, LLC For Lunch And An Educational Meeting About Gaucher Disease

      Special Guest Speakers:

      Ozlem Goker-Alpan, MD
      Director, Lysosomal Disorders Unit
      O&O Alpan LLC
      "New concepts for therapeutic management of Gaucher disease"

      and

      Susan Waterbury, FNP
      Advanced Certified Hospice and Palliative Care Nurse (ACHPN)
      The Infusion Center, O&O ALPAN LLC
      "Practical aspects of pain management"

      When
      Sunday, April 26, 2015
      11:30 a.m. - 3:30 p.m.

      Where
      Maggiano’s Little Italy Tyson’s Corner
      2001 International Drive
      McLean, VA 22102
      (703) 356-9000

      RSVP to Cyndi Frank by Monday, April 20, 2015
      Cyndi@gaucherdisease.org or 877.649.2742

      Meeting supported by educational grants from Genzyme, a Sanofi Company, and Pfizer.
    • Jun 27 - 30, 2015 - Conference on Children's Bone Health - Salzburg, Austria

      7TH INTERNATIONAL CONFERENCE ON CHILDREN'S BONE HEALTH

      The aim of this Conference is to bring together scientists and clinicians from a wide range of disciplines and from across the globe to gain a better understanding of the growing skeleton in health and disease. The scope ranges from basic molecular mechanisms to clinical aspects, from bone physiopathology to treatment. Attendees will have an interest in rare and inherited bone disorders, general aspects of bone metabolism and bone mass in children, adolescents and young adults.

      More information about this event...

      EVENT DETAILS

      WHEN
      Jun 27, 2015 01:00 PM to
      Jun 30, 2015 01:00 PM

      WHERE
      Salzburg, Austria

      CONTACT NAME
      Janet Crompton

      CONTACT PHONE
      441453549929
    • Oct 18 - 19, 2015 - Gaucher Disease Conference - Bethesda, MD

      SAVE THE DATE!
      National Gaucher Foundation, Inc.
      Gaucher disease Conference
      October 18 & 19, 2015
      Doubletree by Hilton
      Bethesda, MD
      Room Reservations: To receive the NGF's group rate for your room reservations, click here.
    NGF Sponsored Patient Meeting
    Non-NGF Sponsored Patient Meeting
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