National Gaucher Foundation - Gaucher Disease
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National Gaucher Foundation's Gaucher Disease Events Calendar

  • National Gaucher Foundation's Events Calendar

    • Oct 1, 2014 - Shire Ambassador Program - Dallas, TX

    • Oct 6, 2014 - Dr. Lau's Gaucher Roundtable - New York, NY

    • Oct 8, 2014 - Genetic, Rare and Immune Disorders Symposium - Fairfax, VA

      GENETIC, RARE AND IMMUNE DISORDERS SYMPOSIUM (GRIDS)

      Hosted by ORAL ALPAN & OZLEM GOKER-ALPAN of the Lysosomal and Rare Disorders Research and Treatment Center

      Wednesday, October 8: 2pm-9pm
      Thursday, October 9: 8am-1pm

      The Fair Oaks Marriott
      Fairfax, VA

      For more information and registration: https://ldrtcevents.squarespace.com/
    • Oct 9, 2014 - Genetic, Rare and Immune Disorders Symposium - Fairfax, VA

      GENETIC, RARE AND IMMUNE DISORDERS SYMPOSIUM (GRIDS)

      Hosted by ORAL ALPAN & OZLEM GOKER-ALPAN of the Lysosomal and Rare Disorders Research and Treatment Center

      Wednesday, October 8: 2pm-9pm
      Thursday, October 9: 8am-1pm

      The Fair Oaks Marriott
      Fairfax, VA

      For more information and registration: https://ldrtcevents.squarespace.com/
    • Oct 9, 2014 - Shire Ambassador Program - Phoenix, AZ

    • Oct 19, 2014 - Lunch And An Educational Meeting - Littleton, CO

      Please Join The National Gaucher Foundation, Inc. For Lunch And An Educational Meeting About Gaucher Disease.

      Gaucher Disease and Parkinson’s Disease:
      What’s the Connection?


      Dimitri Krainc, MD, PhD
      Aaron Montgomery Ward Professor
      Chairman, Department of Neurology
      Northwestern University Feinberg School of Medicine
      Director, Center for Rare Neurological Diseases (CRND)
      "Development of targeted therapies for Parkinson’s and Gaucher disease"

      Jean Jirikowic, MS, CGC
      University of Colorado Hospital Adult Medical Genetics Clinic
      "Gaucher disease update and current therapies."

      When
      Sunday, October 19, 2014
      11:00 a.m. - 2:00 p.m.

      Where
      The Hudson Gardens & Event Center
      6115 S Santa Fe Drive
      Littleton, CO 80120
      Tel: 303.797.8565

      Maps will be available for complimentary self-guided walking tours after the meeting.

      How can YOU best cope with Gaucher?
      Ask Questions • Meet Others • Gather Information • Stay in the Loop
      The NGF is a welcoming community of patients, families, friends and medical professionals.

      2014 Celebrates the NGF’s 30th Anniversary of Services and Support to the Gaucher Community!
      www.gaucherdisease.org

      RSVP to Cyndi Frank by Monday, October 13, 2014
      Cyndi@gaucherdisease.org or 877.649.2742

      Meeting supported by educational grants from Genzyme, a Sanofi Company; Pfizer and Shire Human Genetic Therapies, Inc.
    • Oct 21, 2014 - Genetic Testing in Children and Adolescents - San Diego, CA

      Advocates Luncheon:
      Genetic Testing in Children and Adolescents

      Tuesday, October 21st from 12:30-2 pm ET
      San Diego Convention Center (SDCC), San Diego, California

      Presentation by Jeff Botkin, Professor of Pediatrics at the University of Utah, Adjunct Professor of Human Genetics, Chief of the Division of Medical Ethics and Humanities in the Department of Internal Medicine.

      This year at the 2014 American Society of Human Genetics Annual Meeting, The American Society of Human Genetics and Genetic Alliance have partnered to arrange an exclusive session and networking event for advocates. Join us on Tuesday, October 21st from 12:30-2pm ET to hear about the evolution of genetic testing in children and adolescents, with a specific focus on whole genome sequencing and the release of incidental findings. Meet genetics professionals and share your expertise. Lunch will be provided.

      Patient advocates who are interested in attending should contact James O'Leary by September 17 at joleary@geneticalliance.org. There is no cost to attend this event and a complimentary one-day registration to the ASHG Annual Meeting will be provided.
    • Oct 23, 2014 - Shire Ambassador Program - San Antonio, TX

    • Nov 3, 2014 - Dr. Lau's Gaucher Roundtable - New York, NY

    • Nov 4, 2014 - Shire Ambassador Program - Tulsa, OK

    • Nov 13, 2014 - Shire Ambassador Program - Houston, TX

    • Dec 1, 2014 - Dr. Lau's Gaucher Roundtable - New York, NY

    • Jan 5, 2015 - Dr. Lau's Gaucher Roundtable - New York, NY

    NGF Sponsored Patient Meeting
    Non-NGF Sponsored Patient Meeting
    Event