Events Calendar
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National Gaucher Foundation's Events Calendar
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 May 19, 2013 - Genzyme Interactive Question & Answer Session - Boston, MA
Genzyme cordially invites you to join us for an interactive Question & Answer session, and tour of the Allston manufacturing facility, with:
Pram Mistry, MD, PhD
Professor of Pediatrics and Medicine
Chief, Pediatric Gastroenterology & Hepatology
Yale-New Haven Children’s Hospital
Medical Director, Pediatric Liver Transplant Program
Director, National Gaucher Disease Treatment Center
Yale School of Medicine
TOPIC: Gaucher Disease
A Conversation with an Expert
Sunday, May 19, 2013
11:00 AM- 2:00 PM
Genzyme Allston Landing Facility
70 Western Avenue
Boston, MA 02163
Please RSVP by May 16, 2013 to
Valerie Banks, MS, CGC
Patient Education Liaison
Valerie.banks@genzyme.com or (207) 653-6624
**Allston Landing is technically located at 500 Soldiers Field Road, but our entrance is on Western** **Avenue. When using online direction sites enter 70 Western Avenue, Boston, MA.**
From Points North
Take I-95 S/ MA-128 S toward Providence RI
Take exit 29A to merge onto MA-2 E toward Arlington/ Cambridge
At the traffic circle, take the 2nd exit onto Concord Ave
At the next traffic circle, take the 1st exit onto Fresh Pond Pkwy
Continue onto Gerrys Landing Road
Gerrys Landing Rd turns slightly left and becomes Memorial Drive
Turn right onto Western Avenue. The destination will be on the right.
From Points South
Take I-95 N
Merge onto I-93 N toward Boston
Take exit 20 toward Worcester
Merge onto I-90 W (Toll Road)
Take exit 20 toward Brighton/ Cambridge
Keep right at the fork to continue toward Cambridge Street
Keep right at the fork, follow signs for Cambridge/ Somerville
Slight left onto Cambridge Street
Turn left onto Soldiers Field Road
Turn left onto Western Avenue. The destination will be on the right
From Points West
Take 1-90 E/ Massachusetts Turnpike (Toll Road)
Take exit 18 on the left toward Cambridge
Slight left onto Cambridge Street
Turn left onto Soldiers Field Road
Turn left onto Western Avenue. The destination will be on the right
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 May 19, 2013 - NGF Educational Meeting - Pittsburgh, PA - POSTPONED
Unfortunately, the NGF has decided to postpone the NGF meeting on Sunday, May 19, 2013 at the Carnegie Museum of Art in Pittsburgh, PA, due to low response. We will keep you updated on any future plans for a meeting in the area.
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May 21, 2013 - Shire Ambassador Program - Las Vegas, NV
Join us for an educational event about living with type 1 Gaucher disease
- Learn more about type 1 Gaucher disease
- Listen to a person living with Gaucher disease share their story
- Hear how one person has managed living with their disease
Register today for this FREE event
"I think it is so important to talk to those who have gone through what you have gone through. The support of others can empower you and give you hope"
- Deanna, Shire Ambassador living with type 1 Gaucher disease
When:
Tuesday, May 21, 2013
Registration Time: 6:30 PM
Meeting Time: 7:00 PM
Where:
T-Bones Chophouse
11011 West Charleston Blvd.
Las Vegas, NV 89135
Family and friends are welcome to attend.
Dinner and complimentary parking will be provided.
Please register by 5/16/13
1-855-578-5349
This event is sponsored by Shire
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May 22, 2013 - Shire Ambassador Program - Chicago, IL
Join us for an educational event about living with type 1 Gaucher disease
- Learn more about type 1 Gaucher disease
- Listen to a person living with Gaucher disease share their story
- Hear how one person has managed living with their disease
Register today for this FREE event
"Throughout my journey with Gaucher, I’ve had my share of ups and downs. I know it is up to me to find the silver lining and make the most of my experiences."
- Brian, Shire Ambassador living with type 1 Gaucher disease
When:
Wednesday, May 22, 2013
Registration Time: 6:00 PM
Meeting Time: 6:30 PM
Where:
Fleming's Steakhouse
25 East Ohio Street
Chicago, Illinois 60611
Family and friends are welcome to attend.
Dinner and complimentary parking will be provided.
Please register by 5/17/13
1-855-578-5349
This event is sponsored by Shire
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May 23, 2013 - Shire Ambassador Program - Boca Raton, FL
Join us for an educational event about living with type 1 Gaucher disease
- Learn more about type 1 Gaucher disease
- Listen to a real patient share their story
- Understand ways to manage living with your disease
Register today for this FREE event
"Each person affected by Gaucher Disease has his or her own story to tell, and a unique battle to fight. We need to enter our own battles with mutual support. After all, we're family."
- Wayne, Shire Ambassador living with type 1 Gaucher disease
When:
Thursday, May 23, 2013
Registration Time: 6:00 PM
Meeting Time: 6:30 PM
Where:
Seasons 52
2300 NW Executive Center Dr.
Boca Raton, FL 33431
Family and friends are welcome to attend.
Dinner and complimentary parking will be provided.
Please register by 5/20/13
1-855-578-5349
This event is sponsored by Shire
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Jun 2, 2013 - Pfizer Informative
Community Seminar - Las Vegas, NV
JOIN PFIZER FOR AN INFORMATIVE COMMUNITY SEMINAR ON ADULT TYPE 1 GAUCHER DISEASE
Date: Sunday, June 2, 2013
Time: 12:00 PM
Location: Envy Steak House
Renaissance Las Vegas Hotel
Las Vegas, NV 89169
*Lunch will be provided*
Join:
Cheryl Elzinga, BA
Tower Hematology Oncology
In this community seminar, you will:
- Learn about type 1 Gaucher Disease
- Meet a patient with type 1 Gaucher Disease
- Find out more about a treatment option offered by Pfizer
- Explore the support services offered by Pfizer
Please reply to the Patient Affairs Liaison by phone (866) 212-1600 or email Pfizerprograms@pfizer.com, using Meeting ID# MK19838245.
Thank you!
Pfizer respects your privacy. Pfizer’s educational programs for consumers are conducted in accordance with the same high ethical standards that we apply to our programs for health care professionals. The sole purpose of consumer programs is to educate you on general healthcare issues. Pfizer cannot provide diagnosis, treatment, or other medical advice to you. If you have any medical questions regarding your own health, diagnosis, or treatment, please consult your health care provider
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Jun 4, 2013 - Pfizer Informative
Community Seminar - Cleveland, OH
JOIN PFIZER FOR AN INFORMATIVE COMMUNITY SEMINAR ON ADULT TYPE 1 GAUCHER DISEASE
Date: Tuesday, June 4, 2013
Time: 7:00 PM
Location: Fire Food & Drink
13220 Shaker Square
Cleveland, OH 44120
*Dinner will be provided*
Join:
Laurie Bailey, MS
Genetic Counselor, Coordinator Lysosomal Disease Ctr.
Cincinnati Children's Hospital
In this community seminar, you will:
- Learn about type 1 Gaucher Disease
- Meet a patient with type 1 Gaucher Disease
- Find out more about a treatment option offered by Pfizer
- Explore the support services offered by Pfizer
Please reply to the Patient Affairs Liaison by phone (866) 212-1600 or email Pfizerprograms@pfizer.com, using Meeting ID#MK19862161 (5569898).
Thank you!
Pfizer respects your privacy. Pfizer’s educational programs for consumers are conducted in accordance with the same high ethical standards that we apply to our programs for health care professionals. The sole purpose of consumer programs is to educate you on general healthcare issues. Pfizer cannot provide diagnosis, treatment, or other medical advice to you. If you have any medical questions regarding your own health, diagnosis, or treatment, please consult your health care provider
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Jun 9, 2013 - Shire Ambassador Program - Greenwich, CT
Join us for an educational event about living with type 1 Gaucher disease
- Learn more about type 1 Gaucher disease
- Listen to a real patient share their story
- Understand ways to manage living with your disease
Register today for this FREE event
"Each person affected by Gaucher Disease has his or her own story to tell, and a unique battle to fight. We need to enter our own battles with mutual support. After all, we're family."
- Wayne, Shire Ambassador living with type 1 Gaucher disease
When:
Sunday, June 9, 2013
Registration Time: 11:30 AM
Meeting Time: 12:00 PM
Where:
L'escale
500 Steamboat Road
Greenwich, CT 06830
Family and friends are welcome to attend.
Lunch and complimentary parking will be provided.
Please register by 6/5/13
1-855-578-5349
This event is sponsored by Shire
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Jun 12, 2013 - Pfizer Informative
Community Seminar - Albany, NY
JOIN PFIZER FOR AN INFORMATIVE COMMUNITY SEMINAR ON ADULT TYPE 1 GAUCHER DISEASE
Date: Wednesday, June 12, 2013
Time: 6:30 PM
Location: Sidney Albert JCC
340 Whitehall Road
Albany, NY 12208
*Dinner will be provided*
Join:
Ozlem Goker-Alpan, MD
Director, Lysosomal Disorders Research and Treatment Unit
Fairfax VA
O&O Alpan LLC
In this community seminar, you will:
- Learn about type 1 Gaucher Disease
- Meet a patient with type 1 Gaucher Disease
- Find out more about a treatment option offered by Pfizer
- Explore the support services offered by Pfizer
Please reply to the Patient Affairs Liaison by phone (866) 212-1600 or email Pfizerprograms@pfizer.com, using Meeting ID#MK19768035 (5569224).
Thank you!
Pfizer respects your privacy. Pfizer’s educational programs for consumers are conducted in accordance with the same high ethical standards that we apply to our programs for health care professionals. The sole purpose of consumer programs is to educate you on general healthcare issues. Pfizer cannot provide diagnosis, treatment, or other medical advice to you. If you have any medical questions regarding your own health, diagnosis, or treatment, please consult your health care provider
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Jun 18, 2013 - Pfizer Informative
Community Seminar - Scarsdale, NY
JOIN PFIZER FOR AN INFORMATIVE COMMUNITY SEMINAR ON ADULT TYPE 1 GAUCHER DISEASE
Date: Tuesday, June 18, 2013
Time: 6:30 PM
Location: Jewish Community Center of Mid-Westchester
999 Wilmot Road
Scarsdale, NY 10583
*Dinner will be provided*
Join:
Gregory Pastores, MD
Associate Professor
NYU Langone Medical Center
In this community seminar, you will:
- Learn about type 1 Gaucher Disease
- Meet a patient with type 1 Gaucher Disease
- Find out more about a treatment option offered by Pfizer
- Explore the support services offered by Pfizer
Please reply to the Patient Affairs Liaison by phone (866) 212-1600 or email Pfizerprograms@pfizer.com, using Meeting ID#MK19979011 (5570734).
Thank you!
Pfizer respects your privacy. Pfizer’s educational programs for consumers are conducted in accordance with the same high ethical standards that we apply to our programs for health care professionals. The sole purpose of consumer programs is to educate you on general healthcare issues. Pfizer cannot provide diagnosis, treatment, or other medical advice to you. If you have any medical questions regarding your own health, diagnosis, or treatment, please consult your health care provider
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 Aug 7, 2013 - "Go For Gaucher 5K" appears on 11 Alive - Mugs In the Morning
"Go For Gaucher 5K" appears on 11 Alive - Mugs In the Morning
August 7 and September 4
The National Gaucher Foundation's 5K Walk/Run, scheduled for Sunday, September 29, 2013 will appear on the television show 11 Alive - Mugs In the Morning. The show airs in the Atlanta area Wednesday august 7 and September 4, 2013. Pam McGahagin, Media specialist with WXIA and WATL TV is the person behind 11alive which runs 5 days a week, Monday through Friday. She will announce information about the 2nd Annual Go For Gaucher 5K Walk/Run in August and in September and a large mug with information about the Walk/Run will be featured on her desk as she gives the broadcast. Check out their website at www.11alive.com
If you live in the Atlanta area, please try to catch one of the shows on TV.
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Sep 4, 2013 - "Go For Gaucher 5K" appears on 11 Alive - Mugs In the Morning
"Go For Gaucher 5K" appears on 11 Alive - Mugs In the Morning
August 7 and September 4
The National Gaucher Foundation's 5K Walk/Run, scheduled for Sunday, September 29, 2013 will appear on the television show 11 Alive - Mugs In the Morning. The show airs in the Atlanta area Wednesday august 7 and September 4, 2013. Pam McGahagin, Media specialist with WXIA and WATL TV is the person behind 11alive which runs 5 days a week, Monday through Friday. She will announce information about the 2nd Annual Go For Gaucher 5K Walk/Run in August and in September and a large mug with information about the Walk/Run will be featured on her desk as she gives the broadcast. Check out their website at www.11alive.com
If you live in the Atlanta area, please try to catch one of the shows on TV.
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Sep 29, 2013 - 2nd Annual “Go for Gaucher” 5K Walk/Run - Decatur, GA
Start putting a team together today!
Prizes for top 2 teams and top 2 individuals who raise the most money.
2nd Annual “Go for Gaucher” 5K Walk/Run
Sunday, September 29, 2013
Race and Walk: 1:00 PM
Mason Mill Park, Decatur, GA
Put your team together and join us for our 2nd annual “Go for Gaucher” 5K Walk/Run
| Where: Mason Mill Park, 1340 McConnell Drive, Decatur, GA 30033 |
| Date: Sunday, September 29, 2013 – 1:00 PM |
Registration Deadline: Thursday, September 19 for online and phone registrations
Day of event registration available
(T-shirts guaranteed for all pre-registered runners/walkers) |
| Race/Walk: 11:30 AM for packets and registration and 1:00 PM start of Walk/Run |
| Sponsorship Levels: $10,000 $2,500 $1,000 |
| Entry Fees: NGF Members: $20, General Public: $25, Day of Registration: $30 |
| Program Book Ads Non-Sponsors: Full Page B&W: $250, Half Page B&W $150 |
| Sponsor Ads Free* |
| Ad Sizes (PDFs): Full page: 8” deep x 5" wide, Half page: 4" deep x 2 1/2” wide |
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Participate as an individual, team and/or sponsor.
Prizes for 2 teams and 2 individuals that raise the most money.
For more information please call us at 770-934-2910 or 800-504-3189.
If you cannot join us for our 5K, please consider making a donation to the NGF online or by phone.
Help your family and others who are still waiting to be diagnosed and/or receive treatment.
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NGF Sponsored Patient Meeting |
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Non-NGF Sponsored Patient Meeting |
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Event |
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