National Gaucher Foundation - Gaucher Disease
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Contact the National Gaucher Foundation, Inc.


Board of Directors

Michael David Epstein

Brian E. Berman

Dennis L. Berman

Robin A. Ely, M.D.


NGF Personnel

Rhonda P. Buyers Rhonda P. Buyers
CEO /Executive Director
Day-to-day operations, including all financial Issues; collaborations with other genetic disease organizations.
Contact Info:
61 General Early Drive
Harpers Ferry, WV 25425
Toll Free: 800-504-3189
Fax: 770-934-2911
Cynthia J. Frank Sharon L. Adams
Associate Director
Program management, including the CENA Project and Gaucher Advisory Group; assists CEO with day-to-day operations.
Contact Info:
61 General Early Drive
Harpers Ferry, WV 25425
Toll Free: 800-504-3189
Fax: 877-681-1945
Rosina M. Papantonio Rosina M. Papantonio
Marketing and Communications Director
Marketing and Advertising, education, out-reach and awareness programs; graphic designer; NGF website manager; editor of NGF Newsletter.
Contact Info:
1455 Tiger Lake Drive
Gulf Breeze, FL 32563
Phone: 800-541-7549
Phone: 850-934-0377 or 850-934-0378
Fax: 904-339-9980
Cynthia J. Frank Cynthia J. Frank
Patient Advocacy and Meetings Director
Work with patients and family members to answer specific inquiries for assistance and help them access available resources; organizing and attending patient educational meetings throughout the country.
Contact Info:
309 France Street
Sonoma, CA 95476
Toll Free: 877-649-2742
Phone: 415-839-5155
FAX 415-839-5189
Barbara Lichtenstein Barbara Lichtenstein
Programs Director National Gaucher Care Foundation
CARE Program & CARE+PLUS Program, Care and Care+Plus.
Contact Info:
267 Kentlands Blvd., Box 1084
Gaithersburg, Maryland 20878
(866) 346-8176
FAX: 301-963-4489