National Gaucher Foundation - Gaucher Disease
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Contact the National Gaucher Foundation, Inc.

 

Board of Directors

Michael David Epstein
Chairman/Secretary

Brian E. Berman
President

Dennis L. Berman
Treasurer

Robin A. Ely, M.D.
Director

   
   

NGF Personnel

Rhonda P. Buyers Rhonda P. Buyers
CEO /Executive Director
Day-to-day operations, including all financial Issues; collaborations with other genetic disease organizations.
Contact Info:
2227 Idlewood Road
Suite 6
Tucker, GA 30084
Toll Free: 877-649-2742
Phone: 770-934-2910
Fax: 770-934-2911

rhonda@gaucherdisease.org
Cynthia J. Frank Sharon L. Adams
Associate Director
Program management, including the CENA Project and Gaucher Advisory Group; assists CEO with day-to-day operations.
Contact Info:
61 General Early Drive
Harpers Ferry, WV 25425
404-797-2797
Fax: 877-681-1945

sharon@gaucherdisease.org
Rosina M. Papantonio Rosina M. Papantonio
Marketing and Communications Director
Marketing and Advertising, education, out-reach and awareness programs; graphic designer; NGF website manager; editor of NGF Newsletter.
Contact Info:
1455 Tiger Lake Drive
Gulf Breeze, FL 32563
Phone: 800-541-7549
Phone: 850-934-0377 or 850-934-0378
Fax: 904-339-9980

rosina@gaucherdisease.org
Cynthia J. Frank Cynthia J. Frank
Patient Advocacy and Meetings Director
Work with patients and family members to answer specific inquiries for assistance and help them access available resources; organizing and attending patient educational meetings throughout the country.
Contact Info:
309 France Street
Sonoma, CA 95476
Toll Free: 877-649-2742
Phone: 415-839-5155
FAX 415-839-5189

cyndi@gaucherdisease.org
Barbara Lichtenstein Barbara Lichtenstein
Programs Director National Gaucher Care Foundation
CARE Program & CARE+PLUS Program, Care and Care+Plus.
Contact Info:
267 Kentlands Blvd., Box 1084
Gaithersburg, Maryland 20878
(866) 346-8176
FAX: 301-963-4489

blichtenstein@comcast.net