Events

Community Event

Rare Disease Day at NIH

Feb 27

8:30 am, February 27, 2017 | 10 Center Drive Bethesda, MD 20892

NIH

Rare diseases affect an estimated 25 million Americans. Register today to join hundreds of scientists, patients, advocates and many others for Rare Disease Day at NIH to raise awareness about these diseases, the people they affect, and NIH research collaborations that are making a difference. Sponsored by the National Center for Advancing Translational Sciences (NCATS)… Read More »

Community Event

Rare Disease Day

Feb 28

Did you know?  Rare diseases are not so rare:  there are 7,000 rare diseases & disorders that combined affect 30 million Americans–1 in 10 of us–and more than half are children. People with rare diseases have tremendous unmet needs, including misdiagnosis, a long time to finally receive a correct diagnosis, and when they do, 95%… Read More »

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