Events

Feb 12

4:00 pm, February 12, 2017 | Manchester Grand Hyatt Hotel

National Gaucher Foundation

The National Gaucher Foundation invite you to an educational meeting about Gaucher disease. Read More >>

Community Event

13th Annual WORLDSymposium

Feb 13

February 13, 2017 | San Diego, CA

Each year, WORLDSymposium hosts a scientific meeting presenting the latest information from basic science, translational research, and clinical trials for lysosomal diseases. This symposium is designed to help researchers and clinicians to better manage and understand diagnostic options for patients with lysosomal diseases, identify areas requiring additional basic and clinical research, public policy and regulatory attention, and identify the latest findings in the natural history of lysosomal diseases. Dates for the 13th Annual WORLDSymposium are February 13-17, 2017. Connect to www.WORLDSymposia.org for full details.

Community Event

Rare Disease Day

Feb 28

Did you know?  Rare diseases are not so rare:  there are 7,000 rare diseases & disorders that combined affect 30 million Americans–1 in 10 of us–and more than half are children. People with rare diseases have tremendous unmet needs, including misdiagnosis, a long time to finally receive a correct diagnosis, and when they do, 95%… Read More »

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