Dec 11

6:00 pm, December 11, 2016 | Sheraton Hotel 10207 Wincopin Circle Columbia, MD 21044

Sanofi Genzyme cordially invites you and your family to an interactive discussion and lunch program, presented by Dr. Pramod Mistry. Your Sanofi Genzyme team will also be available to answer any questions. Please RSVP to (Case Manager ) Robin Miskel at (617) 768-8190 or via email

Dec 14

6:00 pm, December 14, 2016 | McCormick & Schmick's - Chicago

Sanofi Genzyme

Sanofi Genzyme cordially invites you and your family to an interactive discussion and Dinner Program on: Living with a Chronic Illness (GZUS.XLSD.15.04.1136(1)) Presented by: Kendra Bjoraker, PhD Minneapolis, MN Mike Jostes Gaucher Patient Wednesday, December 14, 2016 6:00 PM McCormick & Schmick’s Seafood Restaurant 4999 Old Orchard Road Skokie, IL 60077 (847) 763-9811 Your Sanofi… Read More »

Feb 12

4:00 pm, February 12, 2017 | Manchester Grand Hyatt Hotel

National Gaucher Foundation

The National Gaucher Foundation invite you to an educational meeting about Gaucher disease. Read More >>

Community Event

13th Annual WORLDSymposium

Feb 13

February 13, 2017 | San Diego, CA

Each year, WORLDSymposium hosts a scientific meeting presenting the latest information from basic science, translational research, and clinical trials for lysosomal diseases. This symposium is designed to help researchers and clinicians to better manage and understand diagnostic options for patients with lysosomal diseases, identify areas requiring additional basic and clinical research, public policy and regulatory attention, and identify the latest findings in the natural history of lysosomal diseases. Dates for the 13th Annual WORLDSymposium are February 13-17, 2017. Connect to for full details.

Community Event

Rare Disease Day

Feb 28

Did you know?  Rare diseases are not so rare:  there are 7,000 rare diseases & disorders that combined affect 30 million Americans–1 in 10 of us–and more than half are children. People with rare diseases have tremendous unmet needs, including misdiagnosis, a long time to finally receive a correct diagnosis, and when they do, 95%… Read More »

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