CA |
La Jolla Village Family Medical Group
4520 Executive Drive #105 San Dieego CA, 92121
|
Phone: 858-450-5900 |
Principal Investigator:
Daniel Michaels, MD |
FL |
University Research Foundation for Lysosomal Storage Diseases Inc.
(URFLSD) 8170 Royal Palm Boulevard Coral Springs FL, 33065
|
Phone: 954 755-1904 |
Principal Investigator:
Neal J Weinreb, MD |
GA |
Emory University School of Medicine
Department of Human Genetics 2165 N. Decatur Rd. Decatur GA, 30033
|
Phone: 404-778-8565 |
Contact: Suma Shankar, MD |
IL |
Orchard Healthcare Research Inc.
9711 Skokie Boulevard Skokie IL, 60076
|
Phone: 847-568-9930 |
Principal Investigator:
Ira Oliff, MD
Contact:
Joy Jardinico, MSN/ED, BSN, RN
|
KS |
University of Kansas Medical Center
3901 Rainbow Blvd Kansas City KS, 66160
|
Phone: 913-945-6176 or 913-588-6326 |
Principal Investigator:
Majed D. Dasouki, MD
|
MA |
Massachusetts General Hospital
Cancer Center 326 Cambridge Street, 3rd Floor Boston MA, 02114
|
Phone: 877-726-5130 |
Principal Investigator:
David Kuter, MD |
MN |
University of Minnesota
Dept of Pediatrics & Institute of Human Genetics 420 Delaware Street SE Minneapolis MN, 55455
|
Phone: 612-625-7422 |
Principal Investigator:
Chester B. Whitley, MD, PhD |
NC |
Duke University Medical Center
Division of Medical Genetics 595 LaSalle Street Durham NC, 27710
|
Phone: 919-681-1945 |
Principal Investigator:
Priya Kishnani, MD |
NE |
Childrens Specialty Physicians
111 N. 84th Street Omaha NE, 68114
|
Phone: 402-955-4199 |
Principal Investigator: Richard E. Lutz, MD
Contact: Kristi DeHaai |
NY |
Neurogenetics, NYU at Rivergate
550 First Avenue New York, NY 10016 New York NY, 10016
|
Phone: 212-263-8344 |
Principal Investigator:
Gregory M Pastores, MD
|
OR |
Oregon Health & Science University
Medical Group 707 SW Gaines St. Portland OR, 97239
|
Phone: 503-494-7859 |
Principal Investigator:
Robert Steiner, MD
Contact: Susan Lattimore
|
PA |
Children’s Hospital of Pittsburgh of UPMC
Department of Medical Genetics Pittsburgh PA, 15213
|
Phone: 412-692-5070 |
Principal Investigator:
David Finegold, MD |
TX |
Baylor Research Institute at Dallas
Institute of Metabolic Disease 3812 Elm Street Dallas TX, 75246
|
Phone: 214-820-4533 or 214-820-4752 Fax: 214-820-4853 |
Dr. Raphael Schiffmann
Principal Investigator |
UT |
University of Utah Medical Center
100 Mario Capecchi Drive Salt Lake City UT, 84113
|
Phone: 801-581-8943 |
Principal Investigator:
Nicola Longo, MD, PhD |
VA |
Center for Clinical Trials
Springfield VA, 22152
|
Phone: 703-569-1133 |
Principal Investigator: Ozlem Golker-Alpan, MD |
WA |
University of Washington
Department of Pediatrics Seattle WA, 98195
|
Phone: 206-543-3370 |
Principal Investigator: C. Ronald Scott, MD |