HR 5748 IH
September 8, 2008
The Ryan Dant Healthcare Opportunity Act - continues to move along well, gaining bi-partisan support as it moves through the House of Representatives. Currently, the Bill, which is sponsored by Texas Congressman Kenny Marchant, has 14 co-sponsors; seven each from both sides of the isle.
HR 5748 is designed to allow a Medicaid state option that would permit individuals who will be forced on to Medicaid because of high drug costs, to be released from qualifying earnings restrictions. The Bill is designed to assist those with extremely high lifelong prescription drug costs and if passed would allow those with ultra rare diseases such as in the Lysosomal Disease community to qualify for Medicaid and enter the workforce so that they may become a contributor to their communities.
Ryan Dant and his father, Mark will be returning to Washington on September 15th and 16th to meet with several Representatives from across the U.S. To discuss the importance of this legislation to all those with extremely high prescription drug costs. The following is a list of Representatives who have demonstrated their support for the ultra orphan disease community through their co-sponsorship of HR 5748:
CoSponsors:
- Rep Braley, Bruce L. [IA-1] - 6/9/2008 Rep Burgess, Michael C. [TX-26] - 6/10/2008
- Rep Emerson, Jo Ann [MO-8] - 4/24/2008 Rep Gallegly, Elton [CA-24] - 6/5/2008
- Rep Hall, Ralph M. [TX-4] - 6/25/2008 Rep Jackson-Lee, Sheila [TX-18] - 5/20/2008
- Rep Melancon, Charlie [LA-3] - 6/4/2008 Rep Myrick, Sue Wilkins [NC-9] - 6/3/2008
- Rep Ortiz, Solomon P. [TX-27] - 7/22/2008 Rep Pastor, Ed [AZ-4] - 5/19/2008
- Rep Price, David E. [NC-4] - 7/9/2008 Rep Rahall, Nick J., II [WV-3] - 5/1/2008
- Rep Ramstad, Jim [MN-3] - 5/1/2008 Rep Sessions, Pete [TX-32] - 4/30/2008
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