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Thu - Aug 12
7:00 PM |
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Ken Lipkowitz Steinway Concert
Paramus, NJ
You are cordially invited to a complimentary concert by Ken Lipkowitz
Steinway Piano Gallery, Paramus, New Jersey
Thursday, August 12, 2010
7:00 PM
Ken Lipkowitz is a retired physician who resides in Tom River, New Jersey. Ken has always had a great love of music and has played the piano since childhood. He has volunteered to perform at many events over the years and would like to share his music with you.
Ken has devoted recent efforts to research and a cure for Gaucher disease. Gaucher (pronounced Go-Shay), is an enzyme deficiency in which the body is missing one key enzyme that is responsible for breaking down fatty substances within the cell. The disease is genetic and present at birth, however, symptoms can appear at any time from infancy to adulthood. The disease is debilitating and sometimes fatal.
Gaucher disease can cause: Osteoporosis, bone pain and easily broken and fractured bones, bruising, bleeding, nose bleeds, swollen abdomen due to an enlarged liver and/or spleen, chronic fatigue, anemia and low platelet count.
One of the primary modalities of treatment is the intravenous administration of enzyme replacement therapy. For further information please visit the national Gaucher Foundation website www.gaucherdisease.org
We hope you will join us to help raise awareness of Gaucher disease and enjoy the melodic sounds of Ken's music.
Steinway Piano Gallery
455 Route 17 South (South of Ridgewood Avenue)
Paramus, NJ
Please R.S.V.P. To Alexa at 201-261-8877 or alebovitz@steinway.com |
Tue - Aug 24
7:00 PM - 9:00 PM |
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Shire Community Summit Meeting
New York, NY
You are invited to attend a Shire Community Summit Meeting for Gaucher patients and families. Shire Human Genetic Therapies invites the Gaucher community to an informational gathering.
Meet other Gaucher families in your area
Discuss issues related to Gaucher Disease
Get to know Shire Human Genetic Therapies
Learn about treatment options for Gaucher disease
Learn about OnePathSM services offered through Shire
Date: August 24, 2010
Time: 7:00 pm 9:00pm (6:30 arrival for those attending in person)
Location: Marriott East Side
525 Lexington Avenue at 49th Street
New York, NY 10017
Teleconference Dial in: 1 866 515 2914
Web Site: www.visualwebcaster.com/event.asp?id=70172
Passcode (phone and web): 41469369
Dinner Will Be Served
Speakers:
Dr. Gregory Pastores
Rhonda Buyers, CEO & Director of the National Gaucher Foundation
Shire Attendees:
Sylvie Gregoire, President, Shire HGT
Jeff Poulton, SVP & GM North America & Asia Pacific Commercial Operations
Gabe Cohn, MD, MBA, FACMG, FACOG, Medical Director
Sponsored by Shire Human Genetic Therapies
RSVP: Please RSVP to VPRIV@Shire.com |
Thu - Aug 26
5:30 PM |
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Leawood, Kansas Regional Community Summit Meeting
Leawood, KS
You are invited to attend a Leawood, Kansas Regional Community Summit Meeting for Gaucher patients and families. Shire Human Genetic Therapies invites the Gaucher community to an informational gathering
Meet other Gaucher families in your area
Discuss issues related to Gaucher Disease
Get to know Shire Human Genetic Therapies
Learn about treatment options for Gaucher disease
Learn about OnePathSM services offered through Shire
Date: Thursday, August 26, 2010
Time: 5:30 PM
Location: Sullivans Steakhouse
4501 West 119th Street
Leawood, Kansas
913-345-0800
Speakers:
Gregory M. Pastores, MD
Associate Professor of Neurology and Pediatrics
New York University School of Medicine
Sponsored by Shire Human Genetic Therapies
RSVP: Effendi Ortiz-Toro (952-232-7089) |
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