NGF Personnel
Robin A. Ely, M.D.
President and Medical Director
Gaucher research, medical opinions, patient care,
alternative methods of treatment.
Contact Info:
Toll Free: 800-925-8885
robinbmd@aol.com
 Rhonda P. Buyers
CEO/Executive Director
Anything financial - including Patient Resources (not involving CARE or CARE+PLUS), collaborations with other genetic organizations, GOLD & LSD NETWORK, patient assistance and day-to-day operations of the NGF.
Contact Info:
2227 Idlewood Road
Suite 12
Tucker, GA 30084
800-504-3189
FAX: 770-934-2911
rhonda@gaucherdisease.org
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Rosina Papantonio
Marketing Director
Marketing and Advertising, education, out-reach and awareness programs. Management of NGF website and production of NGF Newsletter.
Contact Info:
6523 Watermark Cove
Gulf breeze, FL 32563
Phone: 800-541-7549
Phone: 850-939-4412 or 850-939-4413
Fax: 850-939-4411
rosina@gaucherdisease.org
 Cynthia J. Frank - Bio
Director of Development
Fundraising and development of funding sources.
Contact Info:
309 France Street
Sonoma, CA 95476
Toll Free: 877.649.2742
FAX 415.839.5189
cyndi@gaucherdisease.org
Barbara Lichtenstein
Programs Director National Gaucher Care Foundation
CARE Program & CARE+PLUS Program, Care and Care+Plus.
Contact Info:
267 Kentlands Blvd., Box 1084
Gaithersburg, Maryland 20878
(866) 346-8176
FAX: 301-963-4489
blichtenstein@comcast.net
 Rivers Odendahl
Administrative Assistant
Administrative assistance in the areas of office management, donor information and record keeping, database management.
Contact Info:
2227 Idlewood Road
Suite 12
Tucker, GA 30084
800-504-3189
FAX: 770-934-2911
rivers@gaucherdisease.org
 Megan Kirby
Meetings and Support Service Coordinator
Contact Info:
2227 Idlewood Road
Suite 12
Tucker, GA 30084
770-934-2910
800-504-3189
FAX: 770-934-2911
megan@gaucherdisease.org
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